(Q33774038)

29 July 2017

title

To disclose, or not to disclose? Context matters (English)

1 reference

29 July 2017

4

Bartha Maria Knoppers

0 references

Karine Sénécal

series ordinal

3

object named as

Karine Sénécal

1 reference

29 July 2017

Daniel Sinnett

5

0 references

Denise Avard

series ordinal

2

object named as

Denise Avard

1 reference

29 July 2017

1

Vasiliki Rahimzadeh

1 reference

29 July 2017

publication date

11 June 2014

1 reference

European Journal of Human Genetics

29 July 2017

published in

1 reference

29 July 2017

volume

23

1 reference

29 July 2017

issue

3

1 reference

29 July 2017

page(s)

279-284

1 reference

Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported

29 July 2017

copyright license

start time

11 June 2014

1 reference

April 2022 Public Data File from Crossref

copyright status

copyrighted

0 references

exact match

https://scigraph.springernature.com/pub.10.1038/ejhg.2014.108

0 references

cites work

Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Return of results: ethical and legal distinctions between research and clinical care

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

The right to an open future concerning genetic information

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Addressing the ethical challenges in genetic testing and sequencing of children

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Managing incidental genomic findings in clinical trials: fulfillment of the principle of justice

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Returning genetic research results: study type matters

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Disclosing incidental findings in brain research: the rights of minors in decision-making

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Growing up in the genomic era: implications of whole-genome sequencing for children, families, and pediatric practice

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Incidental findings in the era of whole genome sequencing?

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Researchers' views on return of incidental genomic research results: qualitative and quantitative findings

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Point-counterpoint. Ethics and genomic incidental findings

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

The 'thousand-dollar genome': an ethical exploration

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Paediatric research and the communication of not-so incidental findings

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Ethical and policy issues in genetic testing and screening of children

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Disclosure of incidental findings from next-generation sequencing in pediatric genomic research

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Do researchers have an obligation to actively look for genetic incidental findings?

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Perspectives of clinical genetics professionals toward genome sequencing and incidental findings: a survey study

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Rapid whole-genome sequencing for genetic disease diagnosis in neonatal intensive care units

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Physicians' perspectives on the uncertainties and implications of chromosomal microarray testing of children and families

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

The legal risks of returning results of genomics research

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Incidental findings of therapeutic misconception in biobank-based research

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Researcher perspectives on disclosure of incidental findings in genetic research

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Offering individual genetic research results: context matters

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

The law of incidental findings in human subjects research: establishing researchers' duties

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Incidental findings in pediatric research

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Understanding incidental findings in the context of genetics and genomics

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Disclosing individual genetic results to research participants

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

From genetics to genomics: ethics, policy, and parental decision-making

4 July 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2014.108

Whole-genome sequencing and the physician.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2014.108

Pediatric research and the return of individual research results.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2014.108

Paternalism and the ACMG recommendations on genomic incidental findings: patients seen but not heard

21 January 2018

2 references

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

30 October 2018

https://api.crossref.org/works/10.1038%2FEJHG.2014.108

Biobanks: Validate gene findings before telling donors

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Return of results: not that complicated?

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4062531

Implications of Disclosing Individual Results of Clinical Research

30 October 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2014.108

Predictive Genomic Testing of Children for Adult Onset Disorders: A Canadian Perspective

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2014.108

Therapeutic misconception in clinical research: frequency and risk factors

21 January 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/24916647

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Incidental findings in clinical genomics: a clarification

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2014.108

inferred from DOI database lookup

7 January 2021

based on heuristic

Identifiers

DOI

10.1038/EJHG.2014.108

1 reference

29 July 2017

1 reference

29 July 2017

1 reference