(Q33835535)

29 July 2017

title

Return of results: ethical and legal distinctions between research and clinical care (English)

1 reference

29 July 2017

0 references

1 reference

1

Wylie Burke

1 reference

29 July 2017

3

Gail P Jarvik

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author name string

Barbara J Evans

series ordinal

2

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29 July 2017

publication date

10 March 2014

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American Journal of Medical Genetics Part C: Seminars in Medical Genetics

29 July 2017

published in

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29 July 2017

volume

166C

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29 July 2017

issue

1

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29 July 2017

page(s)

105-111

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Minimizing liability risks under the ACMG recommendations for reporting incidental findings in clinical exome and genome sequencing

29 July 2017

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Return of individual research results and incidental findings: facing the challenges of translational science

4 July 2018

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Researchers' views on return of incidental genomic research results: qualitative and quantitative findings

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Experiences and attitudes of genome investigators regarding return of individual genetic test results

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Perspectives of clinical genetics professionals toward genome sequencing and incidental findings: a survey study

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

A public resource facilitating clinical use of genomes

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

The legal risks of returning results of genomics research

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Incidental findings of therapeutic misconception in biobank-based research

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Genetics researchers' and IRB professionals' attitudes toward genetic research review: a comparative analysis

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

You never call, you never write: why return of 'omic' results to research participants is both a good idea and a moral imperative

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Genomics, health care, and society

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Public perspectives on returning genetics and genomics research results

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Offering individual genetic research results: context matters

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Disclosure of research results from cancer genomic studies: state of the science

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Public expectations for return of results from large-cohort genetic research

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Managing incidental findings in human subjects research: analysis and recommendations

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Communicating the results of clinical research to participants: attitudes, practices, and future directions

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Duty to disclose what? Querying the putative obligation to return research results to participants

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Research ethics and the challenge of whole-genome sequencing

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Clinical trials and medical care: defining the therapeutic misconception

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

The uneasy ethical and legal underpinnings of large-scale genomic biobanks

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Disclosing individual genetic results to research participants

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Trust based obligations of the state and physician-researchers to patient-subjects.

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Disclosing individual results of clinical research: implications of respect for participants

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Currents in contemporary ethics. Research privacy under HIPAA and the common rule

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Considerations and costs of disclosing study findings to research participants

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Ethical considerations for innovations and clinical trials

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

The internal morality of clinical medicine: a paradigm for the ethics of the helping and healing professions.

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Community equipoise and the architecture of clinical research.

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

4 July 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.C.31393

Patient-physician covenant

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.C.31393

Multidimensional results reporting to participants in genomic studies: getting it right.

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.C.31393

Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.C.31393

Best laid plans for offering results go awry.

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.C.31393

Maternal perspectives on the return of genetic results: context matters

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

A legal duty to disclose individual research findings to research subjects?

29 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Twenty-five years of therapeutic misconception.

29 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Controlling the tuberculosis epidemic: the analogy with mental illness.

29 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Clinical Utility and Full Disclosure of Genetic Results to Research Participants

29 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

The emergence of an ethical duty to disclose genetic research results: international perspectives

29 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4078921

Genetic counseling for families with inherited susceptibility to breast and ovarian cancer

29 October 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/24616381

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1002/AJMG.C.31393

1 reference

29 July 2017

1 reference

29 July 2017

1 reference