(Q34382331)

1 August 2017

title

Inclusion of residual tissue in biobanks: opt-in or opt-out? (English)

1 reference

1 August 2017

0 references

2

Annelien L Bredenoord

1 reference

1 August 2017

3

Johannes J M van Delden

1 reference

1 August 2017

1

Noor A A Giesbertz

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1 August 2017

language of work or name

English

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publication date

7 August 2012

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1 August 2017

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1 August 2017

volume

10

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1 August 2017

issue

8

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1 August 2017

page(s)

e1001373

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Creative Commons Attribution 4.0 International

1 August 2017

copyright license

start time

7 August 2012

1 reference

April 2022 Public Data File from Crossref

copyright status

copyrighted

0 references

cites work

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Turning residual human biological materials into research collections: playing with consent

6 July 2018

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6 July 2018

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6 July 2018

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Glad you asked: participants' opinions of re-consent for dbGap data submission

6 July 2018

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Hypothetical and factual willingness to participate in biobank research

6 July 2018

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Principles of human subjects protections applied in an opt-out, de-identified biobank

6 July 2018

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Assessing the privacy risks of data sharing in genomics

6 July 2018

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A trial of consent procedures for future research with clinically derived biological samples

6 July 2018

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"Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose.

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

The obligation to participate in biomedical research

6 July 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Obtaining consent for future research with induced pluripotent cells: opportunities and challenges

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Opt-out plus, the patients' choice: preferences of cancer patients concerning information and consent regimen for future research with biological samples archived in the context of treatment

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Patients' refusal to consent to storage and use of samples in Swedish biobanks: cross sectional study

6 July 2018

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Free riders and pious sons--why science research remains obligatory

6 July 2018

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Research ethics recommendations for whole-genome research: consensus statement

6 July 2018

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Ethical, legal, and social implications of biobanks for genetics research

6 July 2018

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Rules for donations to tissue banks--what next?

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Low risk research using routinely collected identifiable health information without informed consent: encounters with the Patient Information Advisory Group.

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

John Harris' argument for a duty to research

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Participation in biomedical research is an imperfect moral duty: a response to John Harris

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

The uneasy ethical and legal underpinnings of large-scale genomic biobanks

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Value of recruitment strategies used in a primary care practice-based trial

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

TuBaFrost 3: regulatory and ethical issues on the exchange of residual tissue for research across Europe

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Overcoming barriers to recruitment in health research

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

One-time general consent for research on biological samples

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Impact of institutional review board practice variation on observational health services research

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Recruiting patients to medical research: double blind randomised trial of "opt-in" versus "opt-out" strategies

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Potential harms, anonymization, and the right to withdraw consent to biobank research

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Scientific research is a moral duty

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Governing UK Biobank: the importance of ensuring public trust

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Lessons from the central Hampshire electronic health record pilot project: issues of data protection and consent

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

International ethical guidelines for biomedical research involving human subjects.

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

No consent should be needed for using leftover body material for scientific purposes. Against

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

No consent should be needed for using leftover body material for scientific purposes. For.

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Informed consent for genetic research on stored tissue samples

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Two large-scale surveys on community attitudes toward an opt-out biobank.

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Biobank research: who benefits from individual consent?

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Using human tissue: when do we need consent?

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Biobanks and the phantom public

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

27 October 2018

Biobanks need publicity

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Building a foundation for biobanking: the 2009 OECD guidelines on human biobanks and genetic research databases (HBGRDs).

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Donors perceptions of consent to and feedback from biobank research: time to acknowledge diversity?

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Ownership and uses of human tissue: what are the opinions of surgical in-patients?

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Attitudes and perceptions of patients towards methods of establishing a DNA biobank

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

The consent problem within DNA biobanks.

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

One-time general consent for research on biological samples: opt out system for patients is optimal and endorsed in many countries

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

One-time general consent for research on biological samples: good idea, but will it happen?

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

One-time general consent for research on biological samples: autonomy and majority rules have been misunderstood

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Attaining adequate consent for the use of electronic patient records: an opt-out strategy to reconcile individuals' rights and public benefit.

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Solidarity and equity: new ethical frameworks for genetic databases

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Opt-out from biobanks better respects patients' autonomy

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

HUGO Ethics Committee Statement on DNA sampling: control and access

9 December 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3415320

Evidence of support for biobanking practices.

9 December 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22899893

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

The case of biobank with the law: between a legal and scientific fiction

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22899893

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Alternative consent approaches for biobank research

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22899893

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1371/JOURNAL.PBIO.1001373

1 reference

1 August 2017

1 reference

1 August 2017

1 reference