(Q34405755)

2 August 2017

title

Researcher practices on returning genetic research results (English)

1 reference

2 August 2017

Christopher Heaney

1

1 reference

2 August 2017

Genevieve Tindall

series ordinal

2

1 reference

2 August 2017

Joe Lucas

series ordinal

3

1 reference

2 August 2017

Susanne B Haga

series ordinal

4

1 reference

2 August 2017

publication date

12 October 2010

1 reference

Genetic Testing and Molecular Biomarkers

2 August 2017

published in

1 reference

2 August 2017

volume

14

1 reference

2 August 2017

issue

6

1 reference

2 August 2017

page(s)

821-827

1 reference

Disclosure of research results to research participants: A pilot study of the needs and attitudes of adolescents and parents.

2 August 2017

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Public expectations for return of results from large-cohort genetic research

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

The impact of sharing results of a randomized breast cancer clinical trial with study participants

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Communicating the results of clinical research to participants: attitudes, practices, and future directions

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Duty to disclose what? Querying the putative obligation to return research results to participants

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research results

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Offering results to research subjects: U.S. Institutional Review Board policy

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Research ethics and the challenge of whole-genome sequencing

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Attitudes of research ethics board chairs towards disclosure of research results to participants: results of a national survey

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Returning genetic research results to individuals: points-to-consider

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Receiving a summary of the results of a trial: qualitative study of participants' views

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Disclosing individual results of clinical research: implications of respect for participants

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Communication of pharmacogenetic research results to HIV-infected treated patients: standpoints of professionals and patients

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Providing research results to study participants: support versus practice of researchers presenting at the American Society of Hematology annual meeting

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Medical researchers' ancillary clinical care responsibilities

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Oncology physician and nurse practices and attitudes regarding offering clinical trial results to study participants

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Offering to return results to research participants: attitudes and needs of principal investigators in the Children's Oncology Group

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Issues of consent and feedback in a genetic epidemiological study of women with breast cancer

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

The debate over research on stored biological samples: what do sources think?

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Reactions of participants to the results of a randomised controlled trial: exploratory study

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Offering results to research participants

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Native Hawaiian preferences for informed consent and disclosure of results from research using stored biological specimens.

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Impact on survivors of retinoblastoma when informed of study results on risk of second cancers

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Informing subjects of epidemiologic study results. Children's Cancer Group.

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Clinical Utility and Full Disclosure of Genetic Results to Research Participants

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

The emergence of an ethical duty to disclose genetic research results: international perspectives

9 December 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3001830

Do patients participating in clinical trials want to know study results?

9 December 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/20939736

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Sharing research results with patients: the views of care-givers involved in a randomized controlled trial

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/20939736

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Offering participants results of a clinical trial: sharing results of a negative study

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/20939736

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1089/GTMB.2010.0066

1 reference

2 August 2017

1 reference

2 August 2017

1 reference