(Q35168644)

English

Public concerns regarding the storage and secondary uses of residual newborn bloodspots: an analysis of print media, legal cases, and public engagement activities

scientific article

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scholarly article

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

Public concerns regarding the storage and secondary uses of residual newborn bloodspots: an analysis of print media, legal cases, and public engagement activities (English)

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

Karine Sénécal

3

object named as

Karine Sénécal

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

5

object named as

Denise Avard

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

Kieran C O'Doherty

2

object named as

Kieran C O'Doherty

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

author name string

Shannon Cunningham

1

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

David Secko

4

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

publication date

23 December 2014

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

Journal of Community Genetics

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

6

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

2

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

117-128

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

From newborn screening to population health research: implementation of the Michigan BioTrust for health

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

Residual newborn screening samples for research: parental information needs for decision-making

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

DNA methylome profiling using neonatal dried blood spot samples: a proof-of-principle study

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

Retention and research use of residual newborn screening bloodspots

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

Assessing public attitudes on the retention and use of residual newborn screening blood samples: a focus group study

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

Consolidating newborn screening efforts in the Asia Pacific region : Networking and shared education

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

Citizens' values regarding research with stored samples from newborn screening in Canada

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

Public attitudes regarding the use of residual newborn screening specimens for research

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

Storage and use of residual newborn screening blood spots: a public policy emergency

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

State laws regarding the retention and use of residual newborn screening blood samples

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

Acquiring genome-wide gene expression profiles in Guthrie card blood spots using microarrays

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

Newborn screening residual dried blood spot use for newborn screening quality improvement

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

Policy issues and stakeholder concerns regarding the storage and use of residual newborn dried blood samples for research

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

Archived unfrozen neonatal blood spots are amenable to quantitative gene expression analysis.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

Exploring existing and deliberated community perspectives of newborn screening: informing the development of state and national policy standards in newborn screening and the use of dried blood spots

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

13 July 2018

Using thematic analysis in psychology

1 reference

https://api.crossref.org/works/10.1007%2FS12687-014-0206-0

21 January 2018

Newborn screening: a spot of trouble.

1 reference

https://api.crossref.org/works/10.1007%2FS12687-014-0206-0

21 January 2018

Public support for the use of newborn screening dried blood spots in health research

1 reference

https://api.crossref.org/works/10.1007%2FS12687-014-0206-0

21 January 2018

Michigan BioTrust for Health: public support for using residual dried blood spot samples for health research

1 reference

https://api.crossref.org/works/10.1007%2FS12687-014-0206-0

21 January 2018

The use of newborn screening dried blood spots for research: the parental perspective

1 reference

https://api.crossref.org/works/10.1007%2FS12687-014-0206-0

21 January 2018

Research use of leftover newborn bloodspots: attitudes of Canadian geneticists regarding storage and informed consent requirements.

1 reference

https://api.crossref.org/works/10.1007%2FS12687-014-0206-0

21 January 2018

[Promoting public involvement to increase the legitimacy in health policy decisions].

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

27 September 2018

Universal Draft Declaration on Bioethics and Human Rights

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4356669

16 November 2018

The Michigan BioTrust for Health: using dried bloodspots for research to benefit the community while respecting the individual

1 reference

https://pubmed.ncbi.nlm.nih.gov/25533753

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Empirical data about women's attitudes towards a hypothetical pediatric biobank

1 reference

https://pubmed.ncbi.nlm.nih.gov/25533753

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Concerns of newborn blood screening advisory committee members regarding storage and use of residual newborn screening blood spots

1 reference

https://pubmed.ncbi.nlm.nih.gov/25533753

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Committee report: Considerations and recommendations for national guidance regarding the retention and use of residual dried blood spot specimens after newborn screening

1 reference

https://pubmed.ncbi.nlm.nih.gov/25533753

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Attitude to extended use and long-term storage of newborn screening blood spots in Japan

1 reference

https://pubmed.ncbi.nlm.nih.gov/25533753

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Not without my permission: parents' willingness to permit use of newborn screening samples for research

1 reference

https://pubmed.ncbi.nlm.nih.gov/25533753

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Storing newborn blood spots: modern controversies

1 reference

https://pubmed.ncbi.nlm.nih.gov/25533753

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Identifiers

10.1007/S12687-014-0206-0

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

PMC publication ID

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

PubMed publication ID

1 reference

Europe PubMed Central

PubMed publication ID

6 August 2017

ResearchGate publication ID

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