(Q35768370)

10 August 2017

title

Researchers' opinions towards the communication of results of biobank research: a survey study (English)

1 reference

10 August 2017

0 references

Tineke M Meulenkamp

1

1 reference

10 August 2017

Sjef J K Gevers

series ordinal

2

1 reference

10 August 2017

Jasper A Bovenberg

series ordinal

3

1 reference

10 August 2017

Ellen M A Smets

series ordinal

4

1 reference

10 August 2017

publication date

30 November 2011

1 reference

European Journal of Human Genetics

10 August 2017

published in

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10 August 2017

volume

20

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10 August 2017

issue

3

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10 August 2017

page(s)

258-262

1 reference

Attitudes toward genetic research review: results from a survey of human genetics researchers

10 August 2017

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

Disclosure of individual genetic data to research participants: the debate reconsidered

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

Researcher practices on returning genetic research results

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

Offering individual genetic research results: context matters

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

Attitudes toward genetic research review: results from a national survey of professionals involved in human subjects protection

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

The behavioral response to personalized genetic information: will genetic risk profiles motivate individuals and families to choose more healthful behaviors?

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

Obtaining insurance after DNA diagnostics: a survey among hypertrophic cardiomyopathy mutation carriers

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

Researchers' preferences and attitudes on ethical aspects of genomics research: a comparative study between the USA and Spain

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

Informed consent for biorepositories: assessing prospective participants' understanding and opinions

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

The law of incidental findings in human subjects research: establishing researchers' duties

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

Duty to disclose what? Querying the putative obligation to return research results to participants

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

Informed consent and subject motivation to participate in a large, population-based genomics study: the Marshfield Clinic Personalized Medicine Research Project

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

Disclosing individual genetic results to research participants

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

Is it ethical to deny genetic research participants individualised results?

12 July 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2011.216

Subjects matter: a survey of public opinions about a large genetic cohort study

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2011.216

The search for clarity in communicating research results to study participants.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2011.216

One Size Does Not Fit All

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2011.216

The emergence of an ethical duty to disclose genetic research results: international perspectives

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3283180

Biobank research: reporting results to individual participants

15 November 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22126749

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Communication of biobanks' research results: what do (potential) participants want?

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22126749

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1038/EJHG.2011.216

1 reference

10 August 2017

1 reference

10 August 2017

1 reference