(Q35855809)

10 August 2017

"If I could in a small way help": motivations for and beliefs about sample donation for genetic research (English)

1 reference

10 August 2017

1

Marsha Michie

1 reference

10 August 2017

Giselle Corbie-Smith

4

0 references

author name string

Gail Henderson

series ordinal

2

1 reference

10 August 2017

Joanne Garrett

series ordinal

3

1 reference

10 August 2017

language of work or name

English

0 references

publication date

1 June 2011

1 reference

Journal of Empirical Research on Human Research Ethics

10 August 2017

1 reference

10 August 2017

6

1 reference

10 August 2017

2

1 reference

10 August 2017

57-70

1 reference

Partnerships in Health Disparities Research and the Roles of Pastors of Black Churches: Potential Conflict, Synergy, and Expectations

10 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

Glad you asked: participants' opinions of re-consent for dbGap data submission

11 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

Why do people cooperate with medical research? Findings from three studies

11 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

Studying genetic research participants: lessons from the "Learning About Research in North Carolina" study

11 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

GOOD GIFTS FOR THE COMMON GOOD: Blood and Bioethics in the Market of Genetic Research

11 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

Participant characteristics that influence consent for genetic research in a population-based survey: the Baltimore epidemiologic catchment area follow-up

11 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

Beyond “misunderstanding”: Written information and decisions about taking part in a genetic epidemiology study

11 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

Research with stored biological samples: what do research participants want?

11 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research

11 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

Consent for genetic research in a general population: the NHANES experience

11 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

Public attitudes regarding the donation and storage of blood specimens for genetic research

11 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

Attitudes and beliefs of African Americans toward participation in medical research

11 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

The therapeutic misconception: informed consent in psychiatric research

11 July 2018

2 references

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

11 July 2018

https://api.crossref.org/works/10.1525%2FJER.2011.6.2.57

False hopes and best data: consent to research and the therapeutic misconception

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

Racism and research: the case of the Tuskegee Syphilis Study

11 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

Why do they do it? A pilot study towards understanding participant motivation and experience in a large genetic epidemiological study of endometriosis

11 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

Motivating donors to genetic research? Anthropological reasons to rethink the role of informed consent

24 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

“What Are They Going to Do With the Information?” Latino/Latina and African American Perspectives on the Human Genome Project

24 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

Distrust, race, and research

24 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

The continuing legacy of the Tuskegee Syphilis Study: considerations for clinical investigation

24 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

The Emergence of Exchange Structures: An Experimental Study of Uncertainty, Commitment, and Trust

24 September 2018

1 reference

Crossref

https://api.crossref.org/works/10.1525%2FJER.2011.6.2.57

Consent forms and the therapeutic misconception: the example of gene transfer research

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3313647

A Closer Look: Are We Subjects or Are We Donors?

24 September 2018

1 reference

Crossref

https://api.crossref.org/works/10.1525%2FJER.2011.6.2.57

Volunteer human subjects' understandings of their participation in a biomedical research experiment

21 January 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/21680977

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1525/JER.2011.6.2.57

1 reference

10 August 2017

1 reference

10 August 2017

PubMed publication ID

21680977

1 reference