(Q36185071)

12 August 2017

Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment (English)

1 reference

12 August 2017

Stephanie M Fullerton

series ordinal

5

object named as

Stephanie M Fullerton

0 references

Laura Mari Beskow

series ordinal

6

object named as

Laura M Beskow

1 reference

12 August 2017

7

Benjamin S Wilfond

1 reference

12 August 2017

3

Julia Crouch

1 reference

12 August 2017

1

Holly K Tabor

1 reference

12 August 2017

Tracy Brazg

2

1 reference

12 August 2017

Emily E Namey

series ordinal

4

1 reference

12 August 2017

language of work or name

1 reference

1 December 2011

1 reference

Journal of Empirical Research on Human Research Ethics

12 August 2017

1 reference

12 August 2017

6

1 reference

12 August 2017

4

1 reference

12 August 2017

41-52

1 reference

The meaning of genetic research results: reflections from individuals with and without a known genetic disorder

12 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Epilepsy patient-participants and genetic research results as "answers".

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Research participants' perspectives on genotype-driven research recruitment

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Biobanking in pediatrics: the human nonsubjects approach

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Ethical challenges in genotype-driven research recruitment

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Don't throw the baby out with the bathwater: enabling a bottom-up approach in genome-wide association studies

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Introduction: the challenge of incidental findings

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

GOOD GIFTS FOR THE COMMON GOOD: Blood and Bioethics in the Market of Genetic Research

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Disclosing individual genetic results to research participants

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Ethical issues arising from the participation of children in genetic research

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Three approaches to qualitative content analysis

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Informed consent for enrolling minors in genetic susceptibility research: a qualitative study of at-risk children's and parents' views about children's role in decision-making

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Ethical issues with genetic testing in pediatrics

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

What is a meaningful result? Disclosing the results of genomic research in autism to research participants

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

The storage and use of biological tissue samples from minors for research: a focus group study

2 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Biobanks: oversight offers protection

23 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Research ethics. Children and population biobanks

23 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Why do they do it? A pilot study towards understanding participant motivation and experience in a large genetic epidemiological study of endometriosis

23 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Ethical issues in identifying and recruiting participants for familial genetic research.

23 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Parents' and children's attitudes toward the enrollment of minors in genetic susceptibility research: implications for informed consent.

23 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Human tissue samples for research. A focus group study in adults and teenagers in Flanders

23 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Genetic research on stored tissue samples from minors: a systematic review of the ethical literature

21 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion

21 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. American Society of Human Genetics Board of Directors, American College of Medical Genetics Board of Directors

5 December 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3426316

Health-information altruists--a potentially critical resource

5 December 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22228059

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Not without my permission: parents' willingness to permit use of newborn screening samples for research

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22228059

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1525/JER.2011.6.4.41

1 reference

12 August 2017

1 reference

12 August 2017

PubMed publication ID

22228059

1 reference