(Q36197062)

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Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank

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scholarly article

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Europe PubMed Central

PMC publication ID

12 August 2017

Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank (English)

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

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Barbara A Koenig

8

object named as

Barbara A Koenig

0 references

Noralane Lindor

7

object named as

Noralane M Lindor

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

4

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Kari G Chaffee

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

Gloria M Petersen

2

object named as

Gloria M Petersen

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

author name string

Carmen Radecki Breitkopf

1

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

Susan M Wolf

3

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

Marguerite E Robinson

5

1 reference

Europe PubMed Central

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12 August 2017

Deborah R Gordon

6

1 reference

Europe PubMed Central

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12 August 2017

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publication date

1 September 2015

1 reference

Europe PubMed Central

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12 August 2017

Journal of Law, Medicine, and Ethics

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Europe PubMed Central

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12 August 2017

43

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Europe PubMed Central

PMC publication ID

12 August 2017

3

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

464-475

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

1 October 2017

Prevalence of germline mutations in cancer predisposition genes in patients with pancreatic cancer.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

1 October 2017

BRCA1, BRCA2, PALB2, and CDKN2A mutations in familial pancreatic cancer: a PACGENE study

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

1 October 2017

Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

1 October 2017

Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

1 October 2017

Receptivity and preferences of pancreatic cancer family members for participating in lifestyle programs to reduce cancer risk

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

1 October 2017

Factors influencing receptivity to future screening options for pancreatic cancer in those with and without pancreatic cancer family history

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

1 October 2017

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

1 October 2017

Prevalence of CDKN2A mutations in pancreatic cancer patients: implications for genetic counseling

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

1 October 2017

Nucleotide excision repair pathway polymorphisms and pancreatic cancer risk: evidence for role of MMS19L.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

1 October 2017

Public expectations for return of results from large-cohort genetic research

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

1 October 2017

Pancreatic cancer genetic epidemiology consortium

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

1 October 2017

Relationships matter: ethical considerations for returning results to family members of deceased subjects

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

22 September 2018

Disclosing decedents' research results to relatives violates the HIPAA Privacy Rule.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

22 September 2018

The return of results of deceased research participants.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

22 September 2018

Familial communication of research results: a need to know?

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

22 September 2018

Update on Familial Pancreatic Cancer

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617194

21 October 2018

Communication of biobanks' research results: what do (potential) participants want?

1 reference

https://pubmed.ncbi.nlm.nih.gov/26479556

12 December 2020

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Identifiers

10.1111/JLME.12289

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

PMC publication ID

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

PubMed publication ID

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

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