(Q36740226)

16 August 2017

Informed consent and genomic incidental findings: IRB chair perspectives (English)

1 reference

institutional review board

16 August 2017

0 references

0 references

1 reference

Sandra Daack-Hirsch

5

0 references

Janet K. Williams

object named as

Janet K Williams

2

0 references

author name string

Christian M Simon

1

1 reference

16 August 2017

Laura Shinkunas

3

1 reference

16 August 2017

Debra Brandt

4

1 reference

16 August 2017

Martha Driessnack

6

1 reference

16 August 2017

language of work or name

English

0 references

publication date

1 December 2011

1 reference

Journal of Empirical Research on Human Research Ethics

16 August 2017

1 reference

16 August 2017

6

1 reference

16 August 2017

4

1 reference

16 August 2017

53-67

1 reference

Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting

16 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Researcher and institutional review board chair perspectives on incidental findings in genomic research

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Is informed consent broken?

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Active choice but not too active: public perspectives on biobank consent models.

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

A systematic review of the empirical literature evaluating IRBs: what we know and what we still need to learn

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Disclosing individual CDKN2A research results to melanoma survivors: interest, impact, and demands on researchers

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Researcher practices on returning genetic research results

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Researcher perspectives on disclosure of incidental findings in genetic research

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Simplifying informed consent for biorepositories: stakeholder perspectives

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Offering individual genetic research results: context matters

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

CLIA-tested genetic variants on commercial SNP arrays: potential for incidental findings in genome-wide association studies

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Informed consent in genomics and genetic research

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Tailoring the process of informed consent in genetic and genomic research

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Exploring the public understanding of basic genetic concepts

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Disclosure of research results from cancer genomic studies: state of the science

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

IRB Chairs' Perspectives on Genomics Research Involving Stored Biological Materials: Ethical Concerns and Proposed Solutions.

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Genome-wide QTL mapping for three traits related to teat number in a White Duroc x Erhualian pig resource population

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Public expectations for return of results from large-cohort genetic research

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Institutional review board approaches to the incidental findings problem

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

The future of incidental findings: should they be viewed as benefits?

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Understanding incidental findings in the context of genetics and genomics

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Incidental findings in human subjects research: what do investigators owe research participants?

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Managing incidental findings in human subjects research: analysis and recommendations

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Introduction: the challenge of incidental findings

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Research ethics recommendations for whole-genome research: consensus statement

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Taking social relationships seriously: lessons learned from the informed consent practices of a vaccine trial on the Kenyan Coast

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Offering results to research subjects: U.S. Institutional Review Board policy

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Three approaches to qualitative content analysis

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Research in human genetics: the tension between doing no harm and personal autonomy

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

The charitable trust as a model for genomic biobanks

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Genetic test evaluation: information needs of clinicians, policy makers, and the public

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Quality of informed consent in cancer clinical trials: a cross-sectional survey

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Literacy, comprehension, and informed consent in clinical research

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Step into my zapatos, doc: understanding and reducing communication disparities in the multicultural informed consent setting

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Bad news about bad news: the disclosure of risks to insurability in research consent processes.

28 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Incidental findings: a common law approach.

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Downsizing genomic medicine: approaching the ethical complexity of whole-genome sequencing by starting small

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Human genome 10th anniversary. What would you do?

20 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time

20 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3616513

An open access database of genome-wide association results

20 October 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22228060

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Interpreter accuracy and informed consent among Spanish-speaking families with cancer.

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22228060

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Barriers to informed consent

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22228060

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1525/JER.2011.6.4.53

1 reference

16 August 2017

1 reference

16 August 2017

PubMed publication ID

22228060

1 reference