(Q36871066)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

title

The internet user profile of Italian families of patients with rare diseases: a web survey (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

0 references

1 reference

8

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

Alberto E. Tozzi

1

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

Elisabetta Pandolfi

5

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

Emanuela Carloni

6

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

Francesco Gesualdo

7

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

author name string

Rita Mingarelli

2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

Eleonora Agricola

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

Michaela Gonfiantini

4

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

publication date

16 May 2013

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

Orphanet Journal of Rare Diseases

1 March 2020

published in

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

volume

8

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

page(s)

76

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

Online information exchanges for parents of children with a rare health condition: key findings from an online support community

1 March 2020

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3662591

A randomized controlled study about the use of eHealth in the home health care of premature infants.

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3662591

Internet video telephony allows speech reading by deaf individuals and improves speech perception by cochlear implant users

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3662591

Does googling for preconception care result in information consistent with international guidelines: a comparison of information found by Italian women of childbearing age and health professionals

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3662591

Developing health promotion interventions on social networking sites: recommendations from The FaceSpace Project

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3662591

Seeking support on facebook: a content analysis of breast cancer groups

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3662591

Patient-reported outcomes as a source of evidence in off-label prescribing: analysis of data from PatientsLikeMe

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3662591

An online community improves adherence in an internet-mediated walking program. Part 1: results of a randomized controlled trial

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3662591

Parenthood, information and support on the internet. A literature review of research on parents and professionals online

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3662591

Emerging patient-driven health care models: an examination of health social networks, consumer personalized medicine and quantified self-tracking

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3662591

The clinical content of preconception care: genetics and genomics.

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3662591

Medicine 2.0: social networking, collaboration, participation, apomediation, and openness

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3662591

Empirical studies assessing the quality of health information for consumers on the world wide web: a systematic review

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3662591

A content analysis of chronic diseases social groups on Facebook and Twitter.

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3662591

Parents on the web: risks for quality management of cough in children

4 September 2018

1 reference

12 December 2020

Empowerment of patients: lessons from the rare diseases community

1 reference

12 December 2020

'Doctor Google' ending the diagnostic odyssey in lysosomal storage disorders: parents using internet search engines as an efficient diagnostic strategy in rare diseases

1 reference

12 December 2020

'One wants to know what a chromosome is': the internet as a coping resource when adjusting to life parenting a child with a rare genetic disorder

1 reference

12 December 2020

Identifiers

DOI

10.1186/1750-1172-8-76

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

Dimensions Publication ID

1 March 2020

0 references

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

PubMed publication ID

23680013

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23680013%20AND%20SRC:MED&resulttype=core&format=json