(Q37522939)

20 August 2017

Parental permission for pilot newborn screening research: guidelines from the NBSTRN. (English)

1 reference

20 August 2017

0 references

Susan A Berry

6

0 references

Benjamin S Wilfond

15

object named as

Benjamin Wilfond

1 reference

20 August 2017

1

Jeffrey R Botkin

1 reference

20 August 2017

12

Bradford Therrell

1 reference

20 August 2017

Michelle Huckaby Lewis

2

1 reference

20 August 2017

Michael S Watson

3

1 reference

20 August 2017

Kathryn J Swoboda

4

1 reference

20 August 2017

Rebecca Anderson

5

1 reference

20 August 2017

Natasha Bonhomme

7

1 reference

20 August 2017

Jeffrey P Brosco

8

1 reference

20 August 2017

Anne M Comeau

9

1 reference

20 August 2017

Aaron Goldenberg

10

1 reference

20 August 2017

Edward Goldman

11

1 reference

20 August 2017

Jill Levy-Fisch

13

1 reference

20 August 2017

Beth Tarini

14

1 reference

20 August 2017

Bioethics and Legal Work Group of the Newborn Screening Translational Research Network

16

1 reference

20 August 2017

language of work or name

English

0 references

publication date

6 January 2014

1 reference

20 August 2017

1 reference

20 August 2017

133

1 reference

20 August 2017

2

1 reference

20 August 2017

e410-7

1 reference

Weighing the evidence for newborn screening for early-infantile Krabbe disease

20 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3904278

An evidence development process for newborn screening

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3904278

Newborn screening: toward a uniform screening panel and system--executive summary

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3904278

A public health response to emerging technology: expansion of the Massachusetts newborn screening program

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3904278

Patients-in-waiting: Living between sickness and health in the genomics era.

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3904278

Questioning the Need for Informed Consent: A Case Study of California's Experience with a Pilot Newborn Screening Research Project

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3904278

Psychosocial risk associated with newborn screening for cystic fibrosis: parents' experience while awaiting the sweat-test appointment

14 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3904278

Completeness and complexity of information available to parents from newborn-screening programs

14 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3904278

Newborn screening for Krabbe disease: the New York State model.

14 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3904278

Pilot programs in newborn screening.

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3904278

Research for newborn screening: developing a national framework.

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3904278

Waiving informed consent in newborn screening research: balancing social value and respect

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3904278

Informing parents about expanded newborn screening: influences on provider involvement

2 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3904278

Ethical issues in newborn screening research: lessons from the Wisconsin cystic fibrosis trial

5 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3904278

Parents: critical stakeholders in expanding newborn screening

3 December 2018

1 reference

12 December 2020

State newborn screening in the tandem mass spectrometry era: more tests, more false-positive results

1 reference

12 December 2020

Serving the family from birth to the medical home. Newborn screening: a blueprint for the future - a call for a national agenda on state newborn screening programs

1 reference

12 December 2020

Expanded newborn screening for biochemical disorders: the effect of a false-positive result

1 reference

12 December 2020

Primary care physicians' attitudes regarding follow-up care for children with positive newborn screening results

1 reference

12 December 2020

Identifiers

DOI

10.1542/PEDS.2013-2271

1 reference

20 August 2017

1 reference

20 August 2017

PubMed publication ID

24394680

1 reference