(Q37595586)

21 August 2017

Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children (English)

1 reference

21 August 2017

J C Sapp

1

1 reference

21 August 2017

D Dong

2

1 reference

21 August 2017

C Stark

3

1 reference

21 August 2017

L E Ivey

4

1 reference

21 August 2017

G Hooker

5

1 reference

21 August 2017

L G Biesecker

6

1 reference

21 August 2017

B B Biesecker

7

1 reference

21 August 2017

20 September 2013

1 reference

21 August 2017

1 reference

21 August 2017

85

1 reference

21 August 2017

2

1 reference

21 August 2017

120-126

1 reference

Experiences and attitudes of genome investigators regarding return of individual genetic test results

21 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Self-guided management of exome and whole-genome sequencing results: changing the results return model

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Drivers and barriers to patient participation in RCTs

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

You never call, you never write: why return of 'omic' results to research participants is both a good idea and a moral imperative

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Motivators for participation in a whole-genome sequencing study: implications for translational genomics research

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Informed consent in genomics and genetic research

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

23 August 2017

Whole genome sequencing

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Managing incidental findings in human subjects research: analysis and recommendations

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Research ethics recommendations for whole-genome research: consensus statement

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Next-generation sequencing: does the next generation still have a right to an open future?

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

What is a meaningful result? Disclosing the results of genomic research in autism to research participants

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Effects of information on interpersonal attraction: similarity versus affective value.

25 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy

25 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Parental preferences for CDKN2A/p16 testing of minors

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Parent opinions regarding the genetic testing of minors for BRCA1/2.

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

From genetics to genomics: ethics, policy, and parental decision-making

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Who owns your body? A patient's perspective on Washington University v. Catalona

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

The emergence of an ethical duty to disclose genetic research results: international perspectives

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3930614

3 December 2018

Identifiers

DOI

10.1111/CGE.12254

1 reference

21 August 2017

1 reference

21 August 2017

PubMed publication ID

24033230

1 reference