(Q50119980)

6 July 2018

title

Ethical Considerations Related to Return of Results from Genomic Medicine Projects: The eMERGE Network (Phase III) Experience. (English)

1 reference

6 July 2018

main subject

sensitive information

0 references

1 reference

4

1 reference

6 July 2018

Ingrid A Holm

Ingrid Holm

22

0 references

Janet E. Olson

5

Janet Olson

1 reference

6 July 2018

Richard R Sharp

32

Richard R Sharp

1 reference

6 July 2018

Julia Wynn

16

Julia Wynn

1 reference

6 July 2018

Jordan W Smoller

31

Jordan W Smoller

1 reference

6 July 2018

Iftikhar J Kullo

33

Iftikhar J Kullo

1 reference

6 July 2018

author name string

Robyn Fossey

1

1 reference

6 July 2018

David Kochan

2

1 reference

6 July 2018

Erin Winkler

3

1 reference

6 July 2018

Stephen Thibodeau

6

1 reference

6 July 2018

John J Connolly

7

1 reference

6 July 2018

Margaret Harr

8

1 reference

6 July 2018

Meckenzie A Behr

9

1 reference

6 July 2018

Cynthia A Prows

10

1 reference

6 July 2018

Beth Cobb

11

1 reference

6 July 2018

Melanie F Myers

12

1 reference

6 July 2018

Nancy D Leslie

13

1 reference

6 July 2018

Bahram Namjou-Khales

14

1 reference

6 July 2018

Hila Milo Rasouly

15

1 reference

6 July 2018

Alexander Fedotov

17

1 reference

6 July 2018

Wendy K Chung

18

1 reference

6 July 2018

Ali Gharavi

19

1 reference

6 July 2018

Janet L Williams

20

1 reference

6 July 2018

Lynn Pais

21

1 reference

6 July 2018

Sharon Aufox

23

1 reference

6 July 2018

Maureen E Smith

24

1 reference

6 July 2018

Aaron Scrol

25

1 reference

6 July 2018

Kathleen Leppig

26

1 reference

6 July 2018

Gail P Jarvik

27

1 reference

6 July 2018

Georgia L Wiesner

28

1 reference

6 July 2018

Rongling Li

29

1 reference

6 July 2018

Mary Stroud

30

1 reference

6 July 2018

publication date

3 January 2018

1 reference

6 July 2018

Journal of personalized medicine

published in

1 reference

6 July 2018

volume

8

1 reference

6 July 2018

issue

1

1 reference

6 July 2018

Creative Commons Attribution 4.0 International

copyright license

start time

3 January 2018

1 reference

April 2022 Public Data File from Crossref

copyright status

copyrighted

0 references

cites work

Development of Plain Language Supplemental Materials for the Biobank Informed Consent Process

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Genomics in Public Health: Perspective from the Office of Public Health Genomics at the Centers for Disease Control and Prevention (CDC)

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Practical guidance on informed consent for pediatric participants in a biorepository

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Informed consent for biobanking: consensus-based guidelines for adequate comprehension

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Return of results in the genomic medicine projects of the eMERGE network

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Informed consent: Issues and challenges.

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

ACMG recommendations on incidental findings are flawed scientifically and ethically

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Recommendations for returning genomic incidental findings? We need to talk!

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

The Electronic Medical Records and Genomics (eMERGE) Network: past, present, and future

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Point-counterpoint. Patient autonomy and incidental findings in clinical genomics

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Technical report: Ethical and policy issues in genetic testing and screening of children

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Implementing genomic medicine in the clinic: the future is here

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Leveraging the electronic health record to implement genomic medicine

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Is informed consent broken?

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

A systematic review of the empirical literature evaluating IRBs: what we know and what we still need to learn

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

The eMERGE Network: a consortium of biorepositories linked to electronic medical records data for conducting genomic studies

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Research participation and the right to withdraw

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Variations among Institutional Review Board reviews in a multisite health services research study

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

A survey of IRB process in 68 U.S. hospitals

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Problematic variation in local institutional review of a multicenter genetic epidemiology study

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Readability standards for informed-consent forms as compared with actual readability

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Review of first 5 years of screening for familial hypercholesterolaemia in the Netherlands

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Tracing of patients with familial hypercholesterolemia in the Netherlands

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

The ethics of contacting family members of a subject in a genetic research study to return results for an autosomal dominant syndrome.

10 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Incidental findings in clinical genomics: a clarification

14 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

The right to withdraw from research

14 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Long-term compliance with lipid-lowering medication after genetic screening for familial hypercholesterolemia

14 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5872076

Aligning policy to promote cascade genetic screening for prevention and early diagnosis of heritable diseases

14 August 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/29301385

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.3390/JPM8010002

1 reference

6 July 2018

PMC publication ID

5872076

1 reference

6 July 2018

PubMed publication ID

29301385

1 reference

6 July 2018