(Q52934373)

9 May 2018

title

Empirical research on the ethics of genomic research. (English)

1 reference

9 May 2018

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3

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9 May 2018

Anna Middleton

object named as

Anna Middleton

1

0 references

Michael Parker

2

object named as

Michael Parker

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author name string

Michael Parker

2

1 reference

9 May 2018

Eugene Bragin

4

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9 May 2018

Matthew E Hurles

5

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9 May 2018

DDD Study

6

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9 May 2018

language of work or name

English

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publication date

27 June 2013

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9 May 2018

American Journal of Medical Genetics

published in

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9 May 2018

volume

161A

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9 May 2018

issue

8

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9 May 2018

page(s)

2099-2101

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9 May 2018

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

22 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

Researcher Perspectives on Disclosure of Incidental Findings in Genetic Research

22 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

Offering individual genetic research results: context matters

22 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

Personal genome research : what should the participant be told?

22 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

What is a meaningful result? Disclosing the results of genomic research in autism to research participants

22 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

Incidental findings in human subjects research: what do investigators owe research participants?

22 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

Managing incidental findings in human subjects research: analysis and recommendations

22 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research results

22 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

The incidentalome: a threat to genomic medicine

22 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

Returning genetic research results to individuals: points-to-consider

22 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

The debate over research on stored biological samples: what do sources think?

22 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

An empirical examination of the management of return of individual research results and incidental findings in genomic biobanks

22 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

The Deciphering Developmental Disorders (DDD) study.

13 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

Return of "accurate" and "actionable" results: yes!

13 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

Genetics professionals' perspectives on reporting incidental findings from clinical genome-wide sequencing

13 August 2018

2 references

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

2 November 2018

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

Incidental findings in genetic research and clinical diagnostic tests: a systematic review

30 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

Return of results: not that complicated?

2 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

The emergence of an ethical duty to disclose genetic research results: international perspectives

2 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3884757

30 November 2018

Identifiers

DOI

10.1002/AJMG.A.36067

1 reference

9 May 2018

PMC publication ID

3884757

1 reference

9 May 2018

PubMed publication ID

23813698

1 reference

9 May 2018