(Q58091021)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30379944%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

title

A systematic literature review of individuals' perspectives on privacy and genetic information in the United States (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30379944%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

1 reference

1 reference

United States of America

1 reference

Colin M Halverson

2

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30379944%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

Bradley A Malin

series ordinal

4

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30379944%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

language of work or name

English

0 references

publication date

31 October 2018

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30379944%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30379944%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

volume

13

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30379944%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

issue

10

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30379944%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

page(s)

e0204417

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30379944%20AND%20SRC:MED&resulttype=core&format=json

Creative Commons Attribution 4.0 International

1 May 2020

copyright license

start time

31 October 2018

1 reference

April 2022 Public Data File from Crossref

copyright status

copyrighted

0 references

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12 December 2020

The difficulties of recruiting minorities to studies of ethics and values in genetics

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12 December 2020

Mapping the human genome: an assessment of media coverage and public reaction

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12 December 2020

Informed lay preferences for delivery of racially varied pharmacogenomics

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12 December 2020

Perceived disadvantages and concerns about abuses of genetic testing for cancer risk: differences across African American, Latina and Caucasian women

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12 December 2020

Genetics. Genomic research and human subject privacy

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12 December 2020

Warranted concerns, warranted outlooks: a focus group study of public understandings of genetic research

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12 December 2020

Genetic research and testing in critical care: surrogates' perspective

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12 December 2020

Views of female breast cancer patients who donated biologic samples regarding storage and use of samples for genetic research.

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12 December 2020

DNA data sharing: research participants' perspectives

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12 December 2020

Factors associated with African Americans' enrollment in a national cancer genetics registry

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12 December 2020

Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider

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12 December 2020

Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays

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12 December 2020

Patients' views on identifiability of samples and informed consent for genetic research

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12 December 2020

Identifiability of DNA data: the need for consistent federal policy

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12 December 2020

Assessing the understanding of biobank participants.

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12 December 2020

Veterans' attitudes regarding a database for genomic research

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12 December 2020

Cancer patients' attitudes toward future research uses of stored human biological materials

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12 December 2020

Pediatric biobanks: approaching informed consent for continuing research after children grow up.

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12 December 2020

How will GINA influence participation in pharmacogenomics research and clinical testing?

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12 December 2020

Attitudes toward genetic research review: results from a national survey of professionals involved in human subjects protection

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12 December 2020

Genomic research and wide data sharing: views of prospective participants

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12 December 2020

The Havasupai Indian tribe case--lessons for research involving stored biologic samples

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12 December 2020

Simplifying informed consent for biorepositories: stakeholder perspectives

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12 December 2020

Public and biobank participant attitudes toward genetic research participation and data sharing

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12 December 2020

Patient Perspectives on Group Benefits and Harms in Genetic Research

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12 December 2020

Attitudes toward genetic research review: results from a survey of human genetics researchers

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12 December 2020

Ethnic disparities in the perception of ethical risks from psychiatric genetic studies

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12 December 2020

To share or not to share: a randomized trial of consent for data sharing in genome research

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12 December 2020

Assessing and managing risk when sharing aggregate genetic variant data

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12 December 2020

Two large-scale surveys on community attitudes toward an opt-out biobank.

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12 December 2020

Biobank Recruitment: Motivations for Nonparticipation

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12 December 2020

A systematic review of re-identification attacks on health data

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12 December 2020

Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives

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12 December 2020

Genetics researchers' and IRB professionals' attitudes toward genetic research review: a comparative analysis

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12 December 2020

Public attitudes regarding the use of residual newborn screening specimens for research

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12 December 2020

Direct-to-consumer genomic testing: systematic review of the literature on user perspectives.

1 reference

12 December 2020

Patients' experiences on donation of their residual biological samples and the impact of these experiences on the type of consent given for the future research use of the tissue: a systematic review.

1 reference

12 December 2020

Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.

1 reference

12 December 2020

Michigan BioTrust for Health: public support for using residual dried blood spot samples for health research

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12 December 2020

Informed consent for whole genome sequencing: a qualitative analysis of participant expectations and perceptions of risks, benefits, and harms.

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12 December 2020

Parental Perspectives on a Pediatric Human Non-Subjects Biobank

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12 December 2020

Research ethics. The complexities of genomic identifiability

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12 December 2020

Identifying personal genomes by surname inference

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12 December 2020

DNA-Mutation Inventory to Refine and Enhance Cancer Treatment (DIRECT): a catalog of clinically relevant cancer mutations to enable genome-directed anticancer therapy

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12 December 2020

Attitudes about regulation among direct-to-consumer genetic testing customers

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12 December 2020

Found Your DNA on the Web:Reconciling Privacy and Progress

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12 December 2020

Public preferences regarding informed consent models for participation in population-based genomic research

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12 December 2020

Parents' interest in whole-genome sequencing of newborns

1 reference

12 December 2020

Community perspectives on public health biobanking: an analysis of community meetings on the Michigan BioTrust for Health

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12 December 2020

Biospecimen policy: Family matters

1 reference

12 December 2020

Ethical, legal, and social implications of incorporating genomic information into electronic health records

1 reference

12 December 2020

Research participants' attitudes towards the confidentiality of genomic sequence information

1 reference

12 December 2020

Integrating pharmacogenetic information and clinical decision support into the electronic health record

1 reference

12 December 2020

Preemptive genotyping for personalized medicine: design of the right drug, right dose, right time-using genomic data to individualize treatment protocol

1 reference

12 December 2020

Pediatric data sharing in genomic research: attitudes and preferences of parents

1 reference

12 December 2020

Characterizing genetic variants for clinical action

1 reference

12 December 2020

Informed consent for human genetic and genomic studies: a systematic review.

1 reference

12 December 2020

Attitudes of parents of children with serious health conditions regarding residual bloodspot use.

1 reference

12 December 2020

Attitudes regarding privacy of genomic information in personalized cancer therapy

1 reference

12 December 2020

The Ethical, Legal, and Social Implications Program of the National Human Genome Research Institute: reflections on an ongoing experiment

1 reference

12 December 2020

Contrasting the ethical perspectives of biospecimen research among individuals with familial risk for hereditary cancer and biomedical researchers: implications for researcher training.

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12 December 2020

Routes for breaching and protecting genetic privacy

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12 December 2020

Genetic testing for the susceptibility to alcohol dependence: interest and concerns in an African American population

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12 December 2020

GINA, genetic discrimination, and genomic medicine.

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12 December 2020

Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature

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12 December 2020

Genomic data in the electronic medical record: perspectives from a biobank community advisory board

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12 December 2020

A genome sequencing program for novel undiagnosed diseases.

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12 December 2020

Demographic differences in willingness to provide broad and narrow consent for biobank research

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12 December 2020

Using community-based participatory research principles to develop more understandable recruitment and informed consent documents in genomic research

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12 December 2020

Motivations, concerns and preferences of personal genome sequencing research participants: Baseline findings from the HealthSeq project

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12 December 2020

Why the Americans with Disabilities Act Matters for genetics.

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12 December 2020

Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations

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12 December 2020

Privacy Risks from Genomic Data-Sharing Beacons

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12 December 2020

A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.

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12 December 2020

Global trends on fears and concerns of genetic discrimination: a systematic literature review

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12 December 2020

Perspectives of Decisional Surrogates and Patients Regarding Critical Illness Genetic Research

1 reference

12 December 2020

Participants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing

1 reference

12 December 2020

Patient preferences regarding incidental genomic findings discovered during tumor profiling.

1 reference

12 December 2020

'Only a click away - DTC genetics for ancestry, health, love…and more: A view of the business and regulatory landscape'

1 reference

12 December 2020

Participants' Role Expectations in Genetics Research and Re-consent: Revising the Theory and Methods of Mental Models Research Relating to Roles.

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12 December 2020

Genomics is failing on diversity

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12 December 2020

Beyond Our Borders? Public Resistance to Global Genomic Data Sharing

1 reference

12 December 2020

Patients' experiences towards the donation of their residual biological samples and the impact of these experiences on the type of consent given for secondary use: A systematic review

1 reference

12 December 2020

Privacy Attitudes among Early Adopters of Emerging Health Technologies

1 reference

12 December 2020

Expanding Access to Large-Scale Genomic Data While Promoting Privacy: A Game Theoretic Approach

1 reference

12 December 2020

The Common Rule, Updated

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12 December 2020

Federal Policy for the Protection of Human Subjects. Final rule

1 reference

12 December 2020

Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US

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12 December 2020

Paternity testing under the cloak of recreational genetics.

1 reference

12 December 2020

Addressing Beacon re-identification attacks: quantification and mitigation of privacy risks

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12 December 2020

Comparative Approaches to Genetic Discrimination: Chasing Shadows?

1 reference

12 December 2020

De-identified genomic data sharing: the research participant perspective

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12 December 2020

Open sharing of genomic data: Who does it and why?

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12 December 2020

Compelled Disclosures of Health Records: Updated Estimates

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12 December 2020

Phenotype risk scores identify patients with unrecognized Mendelian disease patterns

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12 December 2020

GINA at Ten and the Future of Genetic Nondiscrimination Law

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12 December 2020

Genealogy databases and the future of criminal investigation.

1 reference

12 December 2020

10.1371/JOURNAL.PONE.0204417

Identifiers

DOI

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30379944%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30379944%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

PubMed publication ID

30379944

1 reference