(Q27007817)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

1 reference

0 references

1 reference

title

Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

0 references

0 references

1 reference

2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

author name string

Alma Husedzinovic

1

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

Christoph Schickhardt

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

Stefan Fröhling

4

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

Eva C Winkler

5

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

language of work or name

English

0 references

publication date

4 March 2015

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json

European Journal of Human Genetics

1 March 2020

published in

2 references

PubMed

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

volume

23

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

issue

12

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

page(s)

1607-1614

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json

Mutational signatures: the patterns of somatic mutations hidden in cancer genomes

1 March 2020

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

The tension between data sharing and the protection of privacy in genomics research

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Is informed consent broken?

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

DNA data sharing: research participants' perspectives

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Research ethics and the challenge of whole-genome sequencing

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects

21 March 2017

2 references

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

21 March 2017

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Incidental findings in genetics research using archived DNA

7 April 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Routes for breaching and protecting genetic privacy

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

To share or not to share: a randomized trial of consent for data sharing in genome research

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Public perspectives regarding data-sharing practices in genomics research

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Genomic research and wide data sharing: views of prospective participants

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Assessing the privacy risks of data sharing in genomics

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Public expectations for return of results from large-cohort genetic research

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Identifying personal genomes by surname inference

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs

7 April 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Lessons from the cancer genome

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Cancer patient perceptions on the ethical and legal issues related to biobanking

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Beliefs and attitudes towards participating in genetic research - a population based cross-sectional study

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Patients' willingness to participate in a breast cancer biobank at screening mammogram.

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Community-based partnership to identify keys to biospecimen research participation

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

IRB perspectives on the return of individual results from genomic research

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Informed consent and genomic incidental findings: IRB chair perspectives

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Researchers' opinions towards the communication of results of biobank research: a survey study

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Can Broad Consent be Informed Consent?

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Ethical aspects of human biobanks: a systematic review

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Cochrane Update. 'Scoping the scope' of a cochrane review

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Disclosure of individual genetic data to research participants: the debate reconsidered

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Researcher Perspectives on Disclosure of Incidental Findings in Genetic Research

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Public and biobank participant attitudes toward genetic research participation and data sharing

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Public opinion about the importance of privacy in biobank research

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Substance use disorder genetic research: investigators and participants grapple with the ethical issues

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Cancer patients' attitudes toward future research uses of stored human biological materials

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Obtaining 'fresh' consent for genetic research with biological samples archived 10 years ago.

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Opt-out plus, the patients' choice: preferences of cancer patients concerning information and consent regimen for future research with biological samples archived in the context of treatment

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Patients' views on identifiability of samples and informed consent for genetic research

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Biobanks for genomics and genomics for biobanks

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Understanding incidental findings in the context of genetics and genomics

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

The uneasy ethical and legal underpinnings of large-scale genomic biobanks

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Should donors be allowed to give broad consent to future biobank research?

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Expanding the ethical analysis of biobanks

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Coding and consent: moral challenges of the database project in Iceland.

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

The $1000 genome: ethical and legal issues in whole genome sequencing of individuals

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Polymorphic sequence variants in medicine: a challenge and an opportunity.

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Genetic research on the UK population--do new principles need to be developed?

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

The social and ethical issues of post-genomic human biobanks

28 September 2017

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2015.27

Research on stored biological samples: views of African American and White American cancer patients.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2015.27

Public perspectives on informed consent for biobanking

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2015.27

Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2015.27

Achieving online consent to participation in large-scale gene-environment studies: a tangible destination

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2015.27

Views of female breast cancer patients who donated biologic samples regarding storage and use of samples for genetic research.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2015.27

Informed consent for whole genome sequencing: a qualitative analysis of participant expectations and perceptions of risks, benefits, and harms.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2015.27

Ethnocultural community leaders' views and perceptions on biobanks and population specific genomic research: a qualitative research study

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2015.27

Personal privacy, public benefits, and biobanks: a conjoint analysis of policy priorities and public perceptions

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2015.27

Biobanking, consent, and control: a survey of Albertans on key research ethics issues

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2015.27

Perceptions of potential donors in the Swedish public towards information and consent procedures in relation to use of human tissue samples in biobanks: a population-based study

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2015.27

Human tissue samples and ethics--attitudes of the general public in Sweden to biobank research

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Implications of Disclosing Individual Results of Clinical Research

28 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795193

Communication of biobanks' research results: what do (potential) participants want?

28 November 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/25735479

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1038/EJHG.2015.27

2 references

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json

Dimensions Publication ID

1 March 2020

1044363569

0 references

1 reference

2 references

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json

1 March 2020

PubMed publication ID

25735479

2 references

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25735479%20AND%20SRC:MED&resulttype=core&format=json