(Q36983135)

English

A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs

scientific article published on 02 April 2013

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scholarly article

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs (English)

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

institutional review board

1 reference

based on heuristic

inferred from title

object named as

Lisa L Shah

8

0 references

Sandra Daack-Hirsch

object named as

Sandra E Daack-Hirsch

4

0 references

Janet K. Williams

object named as

Janet K Williams

9

0 references

Stephen L Hillis

object named as

Stephen L Hillis

3

0 references

author name string

Debra S Brandt

1

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

Laura Shinkunas

2

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

Martha Driessnack

5

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

Nancy R Downing

6

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

Megan F Liu

7

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

Christian M Simon

10

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

language of work or name

1 reference

based on heuristic

inferred from title

publication date

2 April 2013

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

Journal of Genetic Counseling

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

22

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

4

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

544-553

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

Next-generation sequencing in the clinic: are we ready?

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.

1 reference

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29 September 2017

The past, present, and future of the debate over return of research results and incidental findings

1 reference

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29 September 2017

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

1 reference

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29 September 2017

Exploring concordance and discordance for return of incidental findings from clinical sequencing

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Researcher and institutional review board chair perspectives on incidental findings in genomic research

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Genetics researchers' and IRB professionals' attitudes toward genetic research review: a comparative analysis

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

IRB perspectives on the return of individual results from genomic research

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Informed consent and genomic incidental findings: IRB chair perspectives

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Biobanks: Importance, Implications and Opportunities for Genetic Counselors

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Offering individual genetic research results: context matters

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Attitudes toward genetic research review: results from a national survey of professionals involved in human subjects protection

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Next-generation sequencing.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Prospective biorepository participants' perspectives on access to research results

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Keeping up with the next generation: massively parallel sequencing in clinical diagnostics

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Institutional review board approaches to the incidental findings problem

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Incidental findings in pediatric research

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Genomic research and incidental findings

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Managing incidental findings in human subjects research: analysis and recommendations

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Ancillary risk information and pharmacogenetic tests: social and policy implications

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

The incidentalome: a threat to genomic medicine

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

A new definition of Genetic Counseling: National Society of Genetic Counselors' Task Force report

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Three approaches to qualitative content analysis

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Informed consent for population-based research involving genetics

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

29 September 2017

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

4 September 2018

New challenges for informed consent through whole genome array testing

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

20 October 2018

“I want to know what's in Pandora's box”: Comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing

2 references

https://api.crossref.org/works/10.1007%2FS10897-013-9583-5

21 January 2018

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

20 October 2018

Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3701750

20 October 2018

Biobank research: reporting results to individual participants

1 reference

https://pubmed.ncbi.nlm.nih.gov/23547023

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Identifiers

10.1007/S10897-013-9583-5

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

PMC publication ID

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

PubMed publication ID

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

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