(Q91623833)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

title

Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

1 reference

1 reference

Armand H Matheny Antommaria

1

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Kyle Brothers

2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Sharon A Aufox

5

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Murray H. Brilliant

6

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Pat Conway

7

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Stephanie M Fullerton

8

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Nanibaa' A Garrison

9

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Gail P. Jarvik

11

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Catherine A. McCarty

14

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Jennifer B McCormick

15

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Nathaniel D Mercaldo

16

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Melanie F Myers

17

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Martha J. Shrubsole

19

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Jonathan S. Schildcrout

20

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Janet L Williams

21

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Maureen E Smith

22

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Ellen Wright Clayton

23

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Ingrid A Holm

24

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

13

Evette J Ludman

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

10

Carol R Horowitz

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

author name string

John A Myers

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Yana B Feygin

4

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Rongling Li

12

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

Saskia C Sanderson

18

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

publication date

1 July 2018

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

published in

AJOB empirical bioethics

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

volume

9

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

issue

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

page(s)

128-142

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

Racial and Ethnic Disparities in Parental Refusal of Consent in a Large, Multisite Pediatric Critical Care Clinical Trial

23 April 2020

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Informed Consent in Decision-Making in Pediatric Practice.

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Opinions of Adolescents and Parents About Pediatric Biobanking.

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Paediatric biobanks: opinions, feelings and attitudes of parents towards the specimen donation of their sick children to a hypothetical biobank.

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

The Electronic Medical Records and Genomics (eMERGE) Network: past, present, and future

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Factors that influence parental decisions to participate in clinical research: consenters vs nonconsenters.

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Parental Perspectives on a Pediatric Human Non-Subjects Biobank

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Socioeconomic determinants associated with willingness to participate in medical research among a diverse population

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Currents in contemporary bioethics. Open access as benefit sharing? The example of publicly funded large-scale genomic databases

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

The tension between data sharing and the protection of privacy in genomics research

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Translational research in pediatrics: tissue sampling and biobanking

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Meeting the governance challenges of next-generation biorepository research

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Not without my permission: parents' willingness to permit use of newborn screening samples for research

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Empirical data about women's attitudes towards a hypothetical pediatric biobank

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Children's and their parents' views on facing research risks for the benefit of others

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Participation of children in clinical research: factors that influence a parent's decision to consent

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

Knowledge of the Tuskegee study and its impact on the willingness to participate in medical research studies.

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6354766

10.1080/23294515.2018.1505783

23 February 2021

Identifiers

DOI

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30240342%20AND%20SRC:MED&resulttype=core&format=json

23 April 2020

PubMed publication ID

30240342

1 reference