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Understanding What Information Is Valued By Research Participants, And Why
scientific article published on 01 March 2019
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1 reference
stated in
Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
title
Understanding What Information Is Valued By Research Participants, And Why
(English)
1 reference
stated in
Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
author
Rebecca N. Jerome
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3
object named as
Rebecca N Jerome
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Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
Jill M. Pulley
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5
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Jill M Pulley
1 reference
stated in
Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
author name string
Consuelo H Wilkins
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1
1 reference
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Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
Brandy M Mapes
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2
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Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
Victoria Villalta-Gil
series ordinal
4
1 reference
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Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
Paul A Harris
series ordinal
6
1 reference
stated in
Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
publication date
1 March 2019
1 reference
stated in
Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
published in
Health Affairs
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Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
volume
38
1 reference
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Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
issue
3
1 reference
stated in
Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
page(s)
399-407
1 reference
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Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
cites work
A Tale of 2 Constituencies: Exploring Patient and Clinician Perspectives in the Age of Big Data
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Return of Research Results to Study Participants: Uncharted and Untested
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Clinical Trial Participants' Views of the Risks and Benefits of Data Sharing
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Views Of Primary Care Providers On Testing Patients For Genetic Risks For Common Chronic Diseases.
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Developing Pharmacogenomic Reports: Insights from Patients and Clinicians.
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Graphics help patients distinguish between urgent and non-urgent deviations in laboratory test results
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Genomics is failing on diversity
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
A Survey of U.S Adults' Opinions about Conduct of a Nationwide Precision Medicine Initiative® Cohort Study of Genes and Environment
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
The significant impact of education, poverty, and race on Internet-based research participant engagement.
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Was it worth it? Patients' perspectives on the perceived value of genomic-based individualized medicine
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Design Features of Explicit Values Clarification Methods: A Systematic Review
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Return of genetic testing results in the era of whole-genome sequencing
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Community Engagement Studios: A Structured Approach to Obtaining Meaningful Input From Stakeholders to Inform Research
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Numeracy and literacy independently predict patients' ability to identify out-of-range test results
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
A framework for analyzing the ethics of disclosing genetic research findings
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Personal utility in genomic testing: is there such a thing?
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
What does the duty to warn require?
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Researchers' views on return of incidental genomic research results: qualitative and quantitative findings
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
The right tool is what they need, not what we have: a taxonomy of appropriate levels of precision in patient risk communication.
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
ResearchMatch: a national registry to recruit volunteers for clinical research
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Social disparities in internet patient portal use in diabetes: evidence that the digital divide extends beyond access
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Disclosing individual results of clinical research: implications of respect for participants
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772
retrieved
23 February 2021
Identifiers
DOI
10.1377/HLTHAFF.2018.05046
1 reference
stated in
Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
PMC publication ID
6706772
1 reference
stated in
Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
PubMed publication ID
30830824
1 reference
stated in
Europe PubMed Central
PMC publication ID
6706772
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json
retrieved
26 April 2020
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