(Q34081010)

30 July 2017

title

A framework for analyzing the ethics of disclosing genetic research findings (English)

1 reference

30 July 2017

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Lisa Eckstein

1

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author name string

Jeremy R Garrett

series ordinal

2

1 reference

30 July 2017

Benjamin E Berkman

series ordinal

3

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30 July 2017

publication date

1 January 2014

1 reference

Journal of Law, Medicine, and Ethics

30 July 2017

published in

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30 July 2017

volume

42

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30 July 2017

issue

2

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30 July 2017

page(s)

190-207

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Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).

30 July 2017

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5 July 2018

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Recommendations for returning genomic incidental findings? We need to talk!

5 July 2018

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Incidental findings in the era of whole genome sequencing?

5 July 2018

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5 July 2018

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5 July 2018

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Do researchers have an obligation to actively look for genetic incidental findings?

5 July 2018

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Mapping the incidentalome: estimating incidental findings generated through clinical pharmacogenomics testing.

5 July 2018

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Managing incidental findings and research results in genomic research involving biobanks and archived data sets

5 July 2018

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IRB perspectives on the return of individual results from genomic research

5 July 2018

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Informed consent and genomic incidental findings: IRB chair perspectives

5 July 2018

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Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research

5 July 2018

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5 July 2018

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Disclosure of individual genetic data to research participants: the debate reconsidered

5 July 2018

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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

5 July 2018

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5 July 2018

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Offering individual genetic research results: context matters

5 July 2018

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Public expectations for return of results from large-cohort genetic research

5 July 2018

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Ethics of future disclosure of individual risk information in a genetic cohort study: a survey of donor preferences

5 July 2018

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The future of incidental findings: should they be viewed as benefits?

5 July 2018

1 reference

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Genomic research and incidental findings

5 July 2018

1 reference

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Understanding incidental findings in the context of genetics and genomics

5 July 2018

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Incidental findings in human subjects research: what do investigators owe research participants?

5 July 2018

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Incidental findings and ancillary-care obligations

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4142504

Managing incidental findings in human subjects research: analysis and recommendations

5 July 2018

1 reference

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Introduction: the challenge of incidental findings

5 July 2018

1 reference

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Communicating the results of clinical research to participants: attitudes, practices, and future directions

5 July 2018

1 reference

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Duty to disclose what? Querying the putative obligation to return research results to participants

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4142504

Research ethics and the challenge of whole-genome sequencing

5 July 2018

1 reference

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Disclosing individual genetic results to research participants

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4142504

Returning genetic research results to individuals: points-to-consider

5 July 2018

1 reference

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Disclosing individual results of clinical research: implications of respect for participants

5 July 2018

1 reference

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Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy

5 July 2018

1 reference

https://api.crossref.org/works/10.1111%2FJLME.12135

Disclosure of individual research results in clinico-genomic trials: challenges, classification and criteria for decision-making

21 January 2018

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https://api.crossref.org/works/10.1111%2FJLME.12135

Secondary variants--in defense of a more fitting term in the incidental findings debate.

21 January 2018

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https://api.crossref.org/works/10.1111%2FJLME.12135

Best laid plans for offering results go awry.

21 January 2018

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https://api.crossref.org/works/10.1111%2FJLME.12135

Return of results: towards a lexicon?

21 January 2018

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Multidimensional results reporting to participants in genomic studies: getting it right.

21 January 2018

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https://api.crossref.org/works/10.1111%2FJLME.12135

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

21 January 2018

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https://api.crossref.org/works/10.1111%2FJLME.12135

Thresholds and boundaries in the disclosure of individual genetic research results.

21 January 2018

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https://api.crossref.org/works/10.1111%2FJLME.12135

Return of "accurate" and "actionable" results: yes!

21 January 2018

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https://api.crossref.org/works/10.1111%2FJLME.12135

Is it ethical to deny genetic research participants individualised results?

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJLME.12135

Tiered disclosure options promote the autonomy and well-being of research subjects.

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJLME.12135

A legal duty to disclose individual research findings to research subjects?

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4142504

Obligations in Offering to Disclose Genetic Research Results

28 October 2018

1 reference

https://api.crossref.org/works/10.1111%2FJLME.12135

Questions, Complexities, and Limitations in Disclosing Individual Genetic Results

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJLME.12135

Disclosing Genetic Research Results: Examples from Practice

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJLME.12135

Ethical Considerations in the Communication of Unexpected Information with Clinical Implications

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJLME.12135

The emergence of an ethical duty to disclose genetic research results: international perspectives

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4142504

Genetic knowledge and moral responsibility: ambiguity at the interface of genetic research and clinical practice

28 October 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/25040383

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Pediatric research 'personalized'? International perspectives on the return of results

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/25040383

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1111/JLME.12135

1 reference

30 July 2017

1 reference

30 July 2017

1 reference