(Q28602512)

2

Edward S Dove

0 references

Deborah Mascalzoni

1

Deborah Mascalzoni

0 references

Hanns Lochmüller

10

Hanns Lochmüller

0 references

Olaf Riess

8

Olaf Riess

0 references

Yaffa Rubinstein

3

Yaffa Rubinstein

0 references

author name string

Hugh J S Dawkins

4

0 references

Anna Kole

5

0 references

Pauline McCormack

6

0 references

Simon Woods

7

0 references

Franz Schaefer

9

0 references

Mats Hansson

European Journal of Human Genetics

12

0 references

language of work or name

English

0 references

publication date

June 2015

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published in

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volume

23

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issue

6

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page(s)

721-8

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cites work

A P3G generic access agreement for population genomic studies

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

From patients to partners: participant-centric initiatives in biomedical research

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

The tension between data sharing and the protection of privacy in genomics research

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

Towards a data sharing Code of Conduct for international genomic research

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

Prepublication data sharing

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

Informed consent in the genomics era

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

From genetic privacy to open consent

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

Genetics. No longer de-identified

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

Rare disease research: Breaking the privacy barrier

17 March 2017

1 reference

https://api.crossref.org/works/10.1038/EJHG.2014.197

Identifying personal genomes by surname inference

22 April 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

Can Broad Consent be Informed Consent?

7 April 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

Bridging consent: from toll bridges to lift bridges?

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

Quality, quantity and harmony: the DataSHaPER approach to integrating data across bioclinical studies

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

Stewardship of human biospecimens, DNA, genotype, and clinical data in the GWAS era.

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

TuBaFrost 3: regulatory and ethical issues on the exchange of residual tissue for research across Europe

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

Should donors be allowed to give broad consent to future biobank research?

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

Coding and consent: moral challenges of the database project in Iceland.

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4795058

Biospecimen "ownership": point

29 September 2017

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2014.197

Ethics bureaucracy: a significant hurdle for collaborative follow-up of drug effectiveness in rare childhood diseases

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2014.197

Ethical framework for previously collected biobank samples

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2014.197

Donors perceptions of consent to and feedback from biobank research: time to acknowledge diversity?

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2014.197

Medical registries represent vital patient interests and should not be dismantled by stricter regulation

21 January 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/25248399

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Broad consent is informed consent

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2014.197

inferred from DOI database lookup

7 January 2021

based on heuristic

Identifiers

DOI

10.1038/EJHG.2014.197

1 reference

1 reference

1 reference

PubMed publication ID

25248399

1 reference