(Q28709472)

3

Stephanie M Fullerton

0 references

Wylie Burke

2

Wylie Burke

0 references

Laura Mari Beskow

1

Laura M Beskow

0 references

Richard R Sharp

4

Genomic research and wide data sharing: views of prospective participants

Richard R Sharp

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language of work or name

English

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publication date

April 2012

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published in

Genetics in Medicine

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volume

14

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issue

4

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page(s)

490-6

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cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Informed consent in the genomics era

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Evolution and translation of research findings: from bench to where?

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Review of community-based research: assessing partnership approaches to improve public health

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Research ethics. Research practice and participant preferences: the growing gulf.

7 April 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Disclosure of individual genetic data to research participants: the debate reconsidered

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Dissemination of results in community-based participatory research

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Glad you asked: participants' opinions of re-consent for dbGap data submission

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Public and biobank participant attitudes toward genetic research participation and data sharing

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Offering individual genetic research results: context matters

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Informed consent in genomics and genetic research

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Ethical challenges in genotype-driven research recruitment

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Prospective biorepository participants' perspectives on access to research results

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Disclosure of research results from cancer genomic studies: state of the science

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Informed consent for biorepositories: assessing prospective participants' understanding and opinions

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Managing incidental findings in human subjects research: analysis and recommendations

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Transforming genetic research practices with marginalized communities: a case for responsive justice

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Ethical, legal, and social implications of biobanks for genetics research

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Duty to disclose what? Querying the putative obligation to return research results to participants

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

The uneasy ethical and legal underpinnings of large-scale genomic biobanks

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Receiving a summary of the results of a trial: qualitative study of participants' views

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Restoring and preserving trust in biomedical research

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Informing study participants of research results: an ethical imperative.

20 June 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2011.62

Best laid plans for offering results go awry.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2011.62

Community engagement and informed consent in the International HapMap project.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2011.62

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2011.62

From consent to institutions: designing adaptive governance for genomic biobanks

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2011.62

OECD guidelines on human biobanks and genetic research databases.

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

The emergence of an ethical duty to disclose genetic research results: international perspectives

27 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Informing subjects of epidemiologic study results. Children's Cancer Group.

27 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3612423

Communication of biobanks' research results: what do (potential) participants want?

27 November 2018

1 reference

12 December 2020

Gene banks and blanket consent

1 reference

12 December 2020

Informing clinical trial participants about study results

1 reference

12 December 2020

Reframing the dissemination challenge: a marketing and distribution perspective

1 reference

12 December 2020

Translation of highly promising basic science research into clinical applications

1 reference

12 December 2020

Identifiers

DOI

10.1038/GIM.2011.62

1 reference

Dimensions Publication ID

1031205698

0 references

1 reference

1 reference

PubMed publication ID

22261761

1 reference