(Q30489911)

20 August 2017

Registered access: a 'Triple-A' approach (English)

1 reference

20 August 2017

6

Bartha M Knoppers

1 reference

20 August 2017

3

Mahsa Shabani

0 references

Adrian Thorogood

object named as

Adrian Thorogood

series ordinal

4

0 references

Stephanie O. M. Dyke

series ordinal

1

object named as

Stephanie O M Dyke

1 reference

20 August 2017

5

Kazuto Kato

1 reference

20 August 2017

Emily Kirby

2

1 reference

20 August 2017

28 September 2016

1 reference

European Journal of Human Genetics

20 August 2017

1 reference

20 August 2017

24

1 reference

20 August 2017

12

1 reference

20 August 2017

1676-1680

1 reference

Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International

20 August 2017

start time

28 September 2016

1 reference

April 2022 Public Data File from Crossref

copyright status

copyrighted

0 references

cites work

GENOMICS. A federated ecosystem for sharing genomic, clinical data

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

Framework for responsible sharing of genomic and health-related data

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

Consent Codes: Upholding Standard Data Use Conditions

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

"You want the right amount of oversight": interviews with data access committee members and experts on genomic data access

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

Controlled Access under Review: Improving the Governance of Genomic Data Access

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

The Matchmaker Exchange: a platform for rare disease gene discovery

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

PhenomeCentral: a portal for phenotypic and genotypic matchmaking of patients with rare genetic diseases

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

From the principles of genomic data sharing to the practices of data access committees

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

Open access data sharing in genomic research

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

A human rights approach to an international code of conduct for genomic and clinical data sharing

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

Data sharing policy design for consortia: challenges for sustainability

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

A map of human genome variation from population-scale sequencing

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

International network of cancer genome projects

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

Prepublication data sharing

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

DECIPHER: Database of Chromosomal Imbalance and Phenotype in Humans Using Ensembl Resources

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

The NCBI dbGaP database of genotypes and phenotypes

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

Online genetic databases informing human genome epidemiology

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

The International HapMap Project

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5117919

Building a data sharing model for global genomic research

28 July 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2016.115

The European Genome-phenome Archive of human data consented for biomedical research.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2016.115

A mechanism for controlled access to GWAS data: experience of the GAIN Data Access Committee

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2016.115

Evolving data access policy: The Canadian context

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2016.115

inferred from DOI database lookup

7 January 2021

based on heuristic

Sharing health-related data: a privacy test?

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2016.115

inferred from DOI database lookup

7 January 2021

based on heuristic

Identifiers

DOI

10.1038/EJHG.2016.115

1 reference

20 August 2017

1 reference

PMC publication ID

5117919

20 August 2017

PubMed publication ID

27677416

1 reference

PMC publication ID

5117919