(Q30540771)

17 August 2017

Recommendations for ethical approaches to genotype-driven research recruitment (English)

1 reference

17 August 2017

0 references

Stephanie M Fullerton

2

object named as

Stephanie M Fullerton

0 references

Emily Namey

object named as

Emily E Namey

3

0 references

Laura Mari Beskow

1

object named as

Laura M Beskow

1 reference

17 August 2017

6

Benjamin S Wilfond

1 reference

17 August 2017

Daniel K Nelson

4

1 reference

17 August 2017

Arlene M Davis

5

1 reference

17 August 2017

24 May 2012

1 reference

17 August 2017

1 reference

17 August 2017

131

1 reference

17 August 2017

9

1 reference

17 August 2017

1423-1431

1 reference

IRB chairs' perspectives on genotype-driven research recruitment

17 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

The meaning of genetic research results: reflections from individuals with and without a known genetic disorder

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

Epilepsy patient-participants and genetic research results as "answers".

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

Research participants' perspectives on genotype-driven research recruitment

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

Charting a course for genomic medicine from base pairs to bedside

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

Offering individual genetic research results: context matters

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

Ethical challenges in genotype-driven research recruitment

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

Don't throw the baby out with the bathwater: enabling a bottom-up approach in genome-wide association studies

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

Managing incidental findings in human subjects research: analysis and recommendations

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

Duty to disclose what? Querying the putative obligation to return research results to participants

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

The Environmental Polymorphisms Registry: a DNA resource to study genetic susceptibility loci

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

Disclosing individual results of clinical research: implications of respect for participants

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

The right not to know: an autonomy based approach

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

Recruitment approaches for family studies: attitudes of index patients and their relatives.

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

Ethical issues in identifying and recruiting participants for familial genetic research.

20 June 2018

1 reference

https://api.crossref.org/works/10.1007%2FS00439-012-1177-Z

Research recruitment through US central cancer registries: balancing privacy and scientific issues.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS00439-012-1177-Z

Reforming the regulations governing research with human subjects

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS00439-012-1177-Z

Multidimensional results reporting to participants in genomic studies: getting it right.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS00439-012-1177-Z

Public Expectations for Return of Results—Time to Stop Being Paternalistic?

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS00439-012-1177-Z

Undesirable Implications of Disclosing Individual Genetic Results to Research Participants

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS00439-012-1177-Z

Maintaining informed consent validity during lengthy research protocols.

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3686635

In defence of ignorance: genetic information and the right not to know

26 November 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22622788

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1007/S00439-012-1177-Z

1 reference

Dimensions Publication ID

17 August 2017

0 references

1 reference

17 August 2017

PubMed publication ID

22622788

1 reference