(Q35945780)

11 August 2017

A Clinical Service to Support the Return of Secondary Genomic Findings in Human Research (English)

1 reference

11 August 2017

7

1 reference

11 August 2017

David A Bluemke

3

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Leslie G Biesecker

15

object named as

Leslie G Biesecker

1 reference

11 August 2017

8

Christine Grady

1 reference

11 August 2017

13

David Resnik

1 reference

11 August 2017

11

Sara Chandros Hull

1 reference

11 August 2017

4

Richard O Cannon

1 reference

11 August 2017

Andrew J Darnell

1

1 reference

11 August 2017

Howard Austin

2

1 reference

11 August 2017

Kenneth Fischbeck

5

1 reference

11 August 2017

William Gahl

6

1 reference

11 August 2017

Mark H Greene

9

1 reference

11 August 2017

Steven M Holland

10

1 reference

11 August 2017

Forbes D Porter

12

1 reference

11 August 2017

Wendy S Rubinstein

14

1 reference

11 August 2017

language of work or name

English

0 references

publication date

1 March 2016

1 reference

American Journal of Human Genetics

11 August 2017

1 reference

11 August 2017

98

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11 August 2017

3

1 reference

11 August 2017

435-441

1 reference

The Genetic Basis of Mendelian Phenotypes: Discoveries, Challenges, and Opportunities

11 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

The Belmont Report. Ethical principles and guidelines for the protection of human subjects of research

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

The cost-effectiveness of returning incidental findings from next-generation genomic sequencing

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Return of individual genetic results in a high-risk sample: enthusiasm and positive behavioral change

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Attitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Diagnostic clinical genome and exome sequencing

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Return of genomic results to research participants: the floor, the ceiling, and the choices in between

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Processes and preliminary outputs for identification of actionable genes as incidental findings in genomic sequence data in the Clinical Sequencing Exploratory Research Consortium

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Return of secondary genomic findings vs patient autonomy: implications for medical care

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Reporting genomic sequencing results to ordering clinicians: incidental, but not exceptional

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Researchers' views on return of incidental genomic research results: qualitative and quantitative findings

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Sequencing studies in human genetics: design and interpretation.

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

'Information is information': a public perspective on incidental findings in clinical and research genome-based testing

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

An ethics framework for a learning health care system: a departure from traditional research ethics and clinical ethics

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Perspectives of clinical genetics professionals toward genome sequencing and incidental findings: a survey study

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Population studies: return of research results and incidental findings Policy Statement

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Public perspectives about pharmacogenetic testing and managing ancillary findings

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Researcher perspectives on disclosure of incidental findings in genetic research

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Managing incidental findings in human subjects research: analysis and recommendations

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

Ethical issues in predictive genetic testing: a public health perspective

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

The duty to rescue in genomic research

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing

24 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4800041

The coming explosion in genetic testing--is there a duty to recontact?

14 November 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/26942283

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1016/J.AJHG.2016.01.010

1 reference

11 August 2017

1 reference

11 August 2017

PubMed publication ID

26942283

1 reference