(Q36210731)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

12 February 2020

title

Community engagement in biobanking: Experiences from the eMERGE Network (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

12 February 2020

0 references

1 reference

6

Susan Brown Trinidad

0 references

Jill M. Pulley

4

object named as

Jill Pulley

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

12 February 2020

author name string

Amy A Lemke

1

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

12 February 2020

Joel T Wu

2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

12 February 2020

Carol Waudby

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

12 February 2020

Carol P Somkin

5

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

12 February 2020

Susan Brown Trinidad

6

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

12 February 2020

publication date

1 January 2010

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

Genomics Society and Policy

12 February 2020

published in

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

12 February 2020

volume

6

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

12 February 2020

issue

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

12 February 2020

page(s)

50

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

Working with Concepts: The Role of Community in International Collaborative Biomedical Research.

12 February 2020

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

The eMERGE Network: a consortium of biorepositories linked to electronic medical records data for conducting genomic studies

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

Glad you asked: participants' opinions of re-consent for dbGap data submission

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

Public and biobank participant attitudes toward genetic research participation and data sharing

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

The Path to Personalized Medicine

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

Genomic research and wide data sharing: views of prospective participants

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

Principles of human subjects protections applied in an opt-out, de-identified biobank

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

The disclosure of diagnosis codes can breach research participants' privacy

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

Attitudes toward genetic research review: results from a national survey of professionals involved in human subjects protection

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

Evaluating re-identification risks with respect to the HIPAA privacy rule

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

Incidental findings in genetics research using archived DNA

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

Development of a large-scale de-identified DNA biobank to enable personalized medicine.

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

The NCBI dbGaP database of genotypes and phenotypes

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

Community engagement in epidemiological research

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

The path from genome-based research to population health: development of an international public health genomics network

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

Strategies for consulting with the community: the cases of four large-scale genetic databases

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

A vision for the future of genomics research

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

DNA databanks and consent: a suggested policy option involving an authorization model

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

What is 'public opinion' about genetics?

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

Involving study populations in the review of genetic research

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

Review of community-based research: assessing partnership approaches to improve public health

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

History of the Rochester Epidemiology Project

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3434453

The emergence of an ethical duty to disclose genetic research results: international perspectives

1 October 2017

1 reference

12 December 2020

Getting personal: the promises and pitfalls of personalized medicine

1 reference

12 December 2020

Community engagement and informed consent in the International HapMap project.

1 reference

12 December 2020

Attitudes and perceptions of patients towards methods of establishing a DNA biobank

1 reference

12 December 2020

The National Institutes of Health announces online availability of "Points to consider when planning a genetic study that involves members of named populations".

1 reference

12 December 2020

Evaluation of the effectiveness of posters to provide information to patients about a DNA database and their opportunity to opt out.

1 reference

12 December 2020

The Havasupai Indian tribe case--lessons for research involving stored biologic samples.

1 reference

12 December 2020

Tribal participatory research: mechanisms of a collaborative model

1 reference

12 December 2020

Engaging the public on biobanks: outcomes of the BC biobank deliberation

1 reference

12 December 2020

The genome gets personal--almost

1 reference

12 December 2020

Building a community-based participatory research center to investigate obesity and diabetes in Alaska Natives

1 reference

12 December 2020

Identifiers

DOI

10.1186/1746-5354-6-3-50

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

12 February 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22962560%20AND%20SRC:MED&resulttype=core&format=json

12 February 2020

PubMed publication ID

22962560

1 reference