(Q46015256)

18 December 2017

title

Disclosure and management of research findings in stem cell research and banking: policy statement. (English)

1 reference

18 December 2017

1 reference

2

Bartha M Knoppers

1 reference

18 December 2017

Clive Morris

10

0 references

Douglas Sipp

Douglas Sipp

11

0 references

Rosario Isasi

1

Rosario Isasi

1 reference

18 December 2017

4

Annelien Bredenoord

1 reference

18 December 2017

7

Sara Hull

1 reference

18 December 2017

Geoffrey P Lomax

9

Geoffrey Lomax

1 reference

18 December 2017

Glyn N. Stacey

12

Glyn Stacey

1 reference

18 December 2017

International Stem Cell Forum Ethics Working Party

15

International Stem Cell Forum Ethics Working Party

1 reference

18 December 2017

author name string

Peter W Andrews

3

1 reference

18 December 2017

Alan Colman

5

1 reference

18 December 2017

Lee Eng Hin

6

1 reference

18 December 2017

Ock-Joo Kim

8

1 reference

18 December 2017

Jan Wahlstrom

13

1 reference

18 December 2017

Fanyi Zeng

14

1 reference

18 December 2017

language of work or name

1 reference

1 May 2012

1 reference

18 December 2017

published in

Regenerative Medicine

1 reference

18 December 2017

volume

7

1 reference

18 December 2017

page(s)

439-448

1 reference

18 December 2017

issue

3

1 reference

18 December 2017

Research ethics and the challenge of whole-genome sequencing

cites work

1 reference

Ethical implications of the use of whole genome methods in medical research

21 January 2018

1 reference

A call for standardized naming and reporting of human ESC and iPSC lines

21 January 2018

1 reference

The nomenclature system should be sustainable, but also practical.

21 January 2018

1 reference

Authentication of human cell-based products: the role of a new consensus standard

21 January 2018

1 reference

Characterization of human embryonic stem cell lines by the International Stem Cell Initiative

21 January 2018

1 reference

Screening ethnically diverse human embryonic stem cells identifies a chromosome 20 minimal amplicon conferring growth advantage

21 January 2018

1 reference

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

21 January 2018

1 reference

Ethical, legal, and social implications of biobanks for genetics research

21 January 2018

1 reference

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

21 January 2018

1 reference

Managing incidental findings in human subjects research: analysis and recommendations

21 January 2018

1 reference

Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy

21 January 2018

1 reference

Return of "accurate" and "actionable" results: yes!

21 January 2018

1 reference

Disclosure of individual genetic data to research participants: the debate reconsidered

21 January 2018

1 reference

Is it ethical to deny genetic research participants individualised results?

21 January 2018

1 reference

Offering individual genetic research results: context matters

21 January 2018

1 reference

Letting the gene out of the bottle: a comment on returning individual research results to participants

21 January 2018

1 reference

Duty to disclose what? Querying the putative obligation to return research results to participants

21 January 2018

1 reference

Prospective biorepository participants' perspectives on access to research results

21 January 2018

1 reference

Public expectations for return of results from large-cohort genetic research

21 January 2018

1 reference

Returning genetic research results to individuals: points-to-consider

21 January 2018

1 reference

Consensus guidance for banking and supply of human embryonic stem cell lines for research purposes

21 January 2018

1 reference

Receiving a summary of the results of a trial: qualitative study of participants' views

21 January 2018

1 reference

Disclosure of genetic information obtained through research

21 January 2018

1 reference

Sustained interaction: the new normal for stem cell repositories?

21 January 2018

1 reference

Considering the nature of individual research results

21 January 2018

1 reference

Disclosure of individual research results in clinico-genomic trials: challenges, classification and criteria for decision-making

21 January 2018

1 reference

Stem cell banking: between traceability and identifiability

21 January 2018

1 reference

Understanding incidental findings in the context of genetics and genomics

21 January 2018

1 reference

Incidental findings in human subjects research: what do investigators owe research participants?

21 January 2018

1 reference

Active choice but not too active: public perspectives on biobank consent models.

21 January 2018

1 reference

Researcher practices on returning genetic research results

21 January 2018

1 reference

Communicating the results of clinical research to participants: attitudes, practices, and future directions

21 January 2018

1 reference

Informed consent for biorepositories: assessing prospective participants' understanding and opinions

21 January 2018

1 reference

Information disclosure in population-based research involving genetics: a framework for the practice of ethics in epidemiology

21 January 2018

1 reference

Population biobanks and returning individual research results: mission impossible or new directions?

21 January 2018

1 reference

Multidimensional results reporting to participants in genomic studies: getting it right.

21 January 2018

1 reference

Tiered disclosure options promote the autonomy and well-being of research subjects.

21 January 2018

1 reference

Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results

21 January 2018

1 reference

How does the collection of genetic test results affect research participants?

21 January 2018

1 reference

The International Stem Cell Banking Initiative (ISCBI): raising standards to bank on.

21 January 2018

1 reference

Obtaining consent for future research with induced pluripotent cells: opportunities and challenges

21 January 2018

1 reference

Publishing SNP genotypes of human embryonic stem cell lines: policy statement of the International Stem Cell Forum Ethics Working Party

21 January 2018

1 reference

Ethical framework for previously collected biobank samples

21 January 2018

1 reference

Implications of Disclosing Individual Results of Clinical Research

21 January 2018

1 reference

Clinical Utility and Full Disclosure of Genetic Results to Research Participants

21 January 2018

1 reference

Undesirable Implications of Disclosing Individual Genetic Results to Research Participants

21 January 2018

1 reference

Disclosing Genetic Research Results: Examples from Practice

21 January 2018

1 reference

The Kindness of Strangers: The Donative Contract Between Subjects and Researchers and the Non-Obligation to Return Individual Results of Genetic Research

21 January 2018

1 reference

Ethical Considerations in the Communication of Unexpected Information with Clinical Implications

21 January 2018

1 reference

Taking Our Obligations to Research Participants Seriously: Disclosing Individual Results of Genetic Research

21 January 2018

1 reference

Obligations in Offering to Disclose Genetic Research Results

21 January 2018

1 reference

Donors perceptions of consent to and feedback from biobank research: time to acknowledge diversity?

21 January 2018

1 reference

21 January 2018

Identifiers

DOI

10.2217/RME.12.23

1 reference

18 December 2017

PubMed ID

22594334

1 reference

18 December 2017