(Q55663109)

19 July 2018

title

Attitudes of non-African American focus group participants toward return of results from exome and whole genome sequencing. (English)

1 reference

19 July 2018

main subject

whole genome sequencing

1 reference

2

Julia Crouch

1 reference

19 July 2018

author name string

Joon-Ho Yu

1

1 reference

19 July 2018

Seema M Jamal

3

1 reference

19 July 2018

Michael J Bamshad

4

1 reference

19 July 2018

Holly K Tabor

5

1 reference

19 July 2018

language of work or name

English

0 references

publication date

20 May 2014

1 reference

19 July 2018

American Journal of Medical Genetics

published in

1 reference

19 July 2018

volume

164A

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19 July 2018

issue

9

1 reference

19 July 2018

page(s)

2153-2160

1 reference

19 July 2018

Technical report: Ethical and policy issues in genetic testing and screening of children

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27 July 2018

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27 July 2018

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27 July 2018

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To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.

27 July 2018

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27 July 2018

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Sporadic autism exomes reveal a highly interconnected protein network of de novo mutations

27 July 2018

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Engaging African-Americans about biobanks and the return of research results

27 July 2018

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Managing incidental findings and research results in genomic research involving biobanks and archived data sets

27 July 2018

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Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

27 July 2018

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Taxonomizing, sizing, and overcoming the incidentalome

27 July 2018

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Human genome sequencing in health and disease

27 July 2018

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Public perspectives about pharmacogenetic testing and managing ancillary findings

27 July 2018

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Exome sequencing as a tool for Mendelian disease gene discovery

27 July 2018

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Motivators for participation in a whole-genome sequencing study: implications for translational genomics research

27 July 2018

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Underutilization of BRCA1/2 testing to guide breast cancer treatment: black and Hispanic women particularly at risk

27 July 2018

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Patient reactions to personalized medicine vignettes: an experimental design

27 July 2018

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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

27 July 2018

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Awareness, perceptions, and provider recommendation related to genetic testing for hereditary breast cancer risk among at-risk Hispanic women: similarities and variations by sub-ethnicity

27 July 2018

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Influence of race/ethnicity on genetic counseling and testing for hereditary breast and ovarian cancer

27 July 2018

1 reference

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Racial differences in parents' distrust of medicine and research

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Association between temporal orientation and attitudes about BRCA1/2 testing among women of African descent with family histories of breast cancer

27 July 2018

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Three approaches to qualitative content analysis

27 July 2018

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Sociocultural influences on participation in genetic risk assessment and testing among African American women

27 July 2018

1 reference

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Addressing the ethical challenges in genetic testing and sequencing of children

27 July 2018

1 reference

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Rare coding variants in the phospholipase D3 gene confer risk for Alzheimer's disease

12 August 2018

1 reference

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Mutations in KPTN cause macrocephaly, neurodevelopmental delay, and seizures

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Clinical whole-exome sequencing for the diagnosis of mendelian disorders

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

ACMG recommendations on incidental findings are flawed scientifically and ethically

12 August 2018

1 reference

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Communicating genetic risk information for common disorders in the era of genomic medicine

12 August 2018

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Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making

12 August 2018

1 reference

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Recommendations for returning genomic incidental findings? We need to talk!

12 August 2018

1 reference

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Incidental findings in clinical genomics: a clarification

12 August 2018

1 reference

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ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

12 August 2018

1 reference

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Point-counterpoint. Patient autonomy and incidental findings in clinical genomics

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Point-counterpoint. Ethics and genomic incidental findings

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing

12 August 2018

1 reference

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Self-guided management of exome and whole-genome sequencing results: changing the results return model

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Attitudes of African Americans toward return of results from exome and whole genome sequencing.

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Practices and policies of clinical exome sequencing providers: analysis and implications.

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Ethnicity, educational level and attitudes contribute to parental intentions about genetic testing for child obesity

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

The Centers for Mendelian Genomics: a new large-scale initiative to identify the genes underlying rare Mendelian conditions.

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Exploring concordance and discordance for return of incidental findings from clinical sequencing

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Attitudes and beliefs of African-Americans toward genetics, genetic testing, and sickle cell disease education and awareness

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Motivations and perceptions of early adopters of personalized genomics: perspectives from research participants

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Regional differences in awareness and attitudes regarding genetic testing for disease risk and ancestry

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Exome sequencing makes medical genomics a reality

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Barriers to the use of genetic testing: a study of racial and ethnic disparities

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Racial differences in knowledge and beliefs about Alzheimer disease.

12 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

“I want to know what's in Pandora's box”: Comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing

12 August 2018

2 references

Crossref

https://api.crossref.org/works/10.1002%2FAJMG.A.36610

21 January 2018

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Paternalism and the ACMG recommendations on genomic incidental findings: patients seen but not heard

2 November 2018

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Crossref

https://api.crossref.org/works/10.1002%2FAJMG.A.36610

21 January 2018

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Return of results: not that complicated?

2 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Secondary researchers' duties to return incidental findings and individual research results: a partial-entrustment account

2 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time

2 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

The emergence of an ethical duty to disclose genetic research results: international perspectives

2 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4357389

Perception of direct-to-consumer genetic testing and direct-to-consumer advertising of genetic tests among members of a large managed care organization

30 November 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/24845082

12 December 2020

inferred from PubMed ID database lookup

Genetic testing in families with hereditary nonpolyposis colon cancer

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/24845082

12 December 2020

inferred from PubMed ID database lookup

Racial differences in the use of BRCA1/2 testing among women with a family history of breast or ovarian cancer

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/24845082

12 December 2020

inferred from PubMed ID database lookup

Identifiers

DOI

10.1002/AJMG.A.36610

1 reference

19 July 2018

release_k3gswhronngvpe3vgqwkc7jm6m

Fatcat ID

1 reference

Fatcat

https://api.fatcat.wiki/v0/release/k3gswhronngvpe3vgqwkc7jm6m

24 November 2022

mapped directly with Wikidata item

PMC publication ID

4357389

1 reference

19 July 2018

PubMed publication ID

24845082

1 reference

19 July 2018