(Q33934216)

30 July 2017

title

Models of consent to return of incidental findings in genomic research (English)

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30 July 2017

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Paul Stuart Appelbaum

series ordinal

1

object named as

Paul S Appelbaum

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30 July 2017

8

Wendy K Chung

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30 July 2017

2

Erik Parens

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30 July 2017

4

Robert Klitzman

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30 July 2017

6

Josue Martinez

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30 July 2017

Cameron R Waldman

3

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30 July 2017

Abby Fyer

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5

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30 July 2017

W Nicholson Price

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7

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30 July 2017

language of work or name

English

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publication date

11 June 2014

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30 July 2017

published in

Hastings Center Report

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30 July 2017

volume

44

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30 July 2017

issue

4

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30 July 2017

page(s)

22-32

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The Informed Cohort Oversight Board: From Values to Architecture

30 July 2017

cites work

1 reference

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ACMG recommendations on incidental findings are flawed scientifically and ethically

5 July 2018

1 reference

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Return of secondary genomic findings vs patient autonomy: implications for medical care

5 July 2018

1 reference

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Recommendations for returning genomic incidental findings? We need to talk!

5 July 2018

1 reference

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Researchers' views on return of incidental genomic research results: qualitative and quantitative findings

5 July 2018

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ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

5 July 2018

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Reflecting on earlier experiences with unsolicited findings: points to consider for next-generation sequencing and informed consent in diagnostics

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

Point-counterpoint. Ethics and genomic incidental findings

5 July 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

Experiences and attitudes of genome investigators regarding return of individual genetic test results

5 July 2018

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Self-guided management of exome and whole-genome sequencing results: changing the results return model

5 July 2018

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Management of incidental findings in clinical genomic sequencing

5 July 2018

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The disclosure of incidental genomic findings: an "ethically important moment" in pediatric research and practice

5 July 2018

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Do researchers have an obligation to actively look for genetic incidental findings?

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

Incidental genetic findings in randomized clinical trials: recommendations from the Genomics and Randomized Trials Network (GARNET).

5 July 2018

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Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process

5 July 2018

1 reference

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A tiered-layered-staged model for informed consent in personal genome testing.

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

5 July 2018

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Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

5 July 2018

1 reference

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Length and complexity of US and international HIV consent forms from federal HIV network trials

5 July 2018

1 reference

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Disclosure of individual genetic data to research participants: the debate reconsidered

5 July 2018

1 reference

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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

5 July 2018

1 reference

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The $1,000 genome, the $100,000 analysis?

5 July 2018

1 reference

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Whole genome scanning: resolving clinical diagnosis and management amidst complex data

5 July 2018

1 reference

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Public expectations for return of results from large-cohort genetic research

5 July 2018

1 reference

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Genome-based prediction of common diseases: advances and prospects

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

Incidental findings in genetics research using archived DNA

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

Incidental findings and ancillary-care obligations

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

Managing incidental findings in human subjects research: analysis and recommendations

5 July 2018

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Barriers to participating in genetic counseling and BRCA testing during primary treatment for breast cancer

5 July 2018

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5 July 2018

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5 July 2018

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Staged informed consent for a randomized clinical trial in childhood leukemia: impact on the consent process

5 July 2018

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5 July 2018

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Incidental findings in the era of whole genome sequencing?

5 July 2018

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Incidental variants are critical for genomics

21 January 2018

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21 January 2018

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21 January 2018

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21 January 2018

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Tiered disclosure options promote the autonomy and well-being of research subjects.

21 January 2018

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21 January 2018

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21 January 2018

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21 January 2018

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Paternalism and the ACMG recommendations on genomic incidental findings: patients seen but not heard

21 January 2018

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21 January 2018

International normative perspectives on the return of individual research results and incidental findings in genomic biobanks

29 October 2018

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Promoting the participant-researcher partnership

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

Understanding of informed consent by parents of children enrolled in a genetic biobank

29 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

Return of results: not that complicated?

29 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time

29 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

The evolution of consent forms for research: a quarter century of changes

29 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

New challenges for informed consent through whole genome array testing

29 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

Longer consent forms for clinical trials compromise patient understanding: so why are they lengthening?

29 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4107028

Challenges in the clinical application of whole-genome sequencing

29 October 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/24919982

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1002/HAST.328

1 reference

30 July 2017

1 reference

30 July 2017

1 reference