(Q39276157)

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Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board

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scholarly article

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Europe PubMed Central

PubMed publication ID

10 September 2017

Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board (English)

1 reference

Europe PubMed Central

PubMed publication ID

10 September 2017

Eric T. Juengst

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Eric Juengst

4

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Ingrid A Holm

1

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object named as

Steven Joffe

8

0 references

Robert C. Green

3

object named as

Robert C Green

1 reference

Europe PubMed Central

PubMed publication ID

10 September 2017

author name string

Sarah K Savage

2

1 reference

Europe PubMed Central

PubMed publication ID

10 September 2017

Amy McGuire

5

1 reference

Europe PubMed Central

PubMed publication ID

10 September 2017

Susan Kornetsky

6

1 reference

Europe PubMed Central

PubMed publication ID

10 September 2017

Stephanie J Brewster

7

1 reference

Europe PubMed Central

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10 September 2017

Patrick Taylor

9

1 reference

Europe PubMed Central

PubMed publication ID

10 September 2017

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publication date

9 January 2014

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Europe PubMed Central

PubMed publication ID

10 September 2017

Genetics in Medicine

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Europe PubMed Central

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10 September 2017

16

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Europe PubMed Central

PubMed publication ID

10 September 2017

7

1 reference

Europe PubMed Central

PubMed publication ID

10 September 2017

547-552

1 reference

Europe PubMed Central

PubMed publication ID

10 September 2017

https://scigraph.springernature.com/pub.10.1038/gim.2013.190

0 references

Multidimensional results reporting to participants in genomic studies: getting it right.

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

Medicine. Reestablishing the researcher-patient compact.

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

The past, present, and future of the debate over return of research results and incidental findings

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

Subjects matter: a survey of public opinions about a large genetic cohort study.

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

Public expectations for return of results from large-cohort genetic research

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

Disclosing individual genetic results to research participants

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

Tiered disclosure options promote the autonomy and well-being of research subjects.

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

Evaluating the utility of personal genomic information

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

Evaluation of the validity and utility of genetic testing for rare diseases

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

Personal utility and genomic information: look before you leap

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

The Scientific Foundation for personal genomics: recommendations from a National Institutes of Health-Centers for Disease Control and Prevention multidisciplinary workshop

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

Ethical issues with genetic testing in pediatrics

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

Technical report: Ethical and policy issues in genetic testing and screening of children

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

21 January 2018

When should an investigator share raw data with the subjects?

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

7 January 2021

based on heuristic

inferred from DOI database lookup

The ancillary-care responsibilities of medical researchers. An ethical framework for thinking about the clinical care that researchers owe their subjects

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.190

7 January 2021

based on heuristic

inferred from DOI database lookup

Identifiers

10.1038/GIM.2013.190

1 reference

Europe PubMed Central

PubMed publication ID

10 September 2017

PubMed publication ID

1 reference

Europe PubMed Central

PubMed publication ID

10 September 2017

ResearchGate publication ID

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