(Q57642631)

6

Denise Avard

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Kym M Boycott

9

Kym M Boycott

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Eric Bouffet

2

Eric Bouffet

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Conrad V Fernandez

1

Conrad V Fernandez

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Colleen M O'Connell

5

Colleen O'Connell

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David Malkin

3

David Malkin

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Meghan Ferguson

8

Meghan Ferguson

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Johane M Robitaille

12

Johane M Robitaille

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author name string

Nada Jabado

4

0 references

Poul H Sorensen

10

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Andrew C Orr

11

0 references

Christopher R McMaster

https://scigraph.springernature.com/pub.10.1038/gim.2013.201

13

0 references

language of work or name

English

0 references

publication date

August 2014

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published in

Genetics in Medicine

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volume

16

0 references

issue

8

0 references

page(s)

633-40

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exact match

0 references

cites work

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

International normative perspectives on the return of individual research results and incidental findings in genomic biobanks

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Managing incidental findings in human subjects research: analysis and recommendations

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Research ethics recommendations for whole-genome research: consensus statement

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

What is a meaningful result? Disclosing the results of genomic research in autism to research participants

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Researchers' perceptions of the ethical implications of pharmacogenomics research with children

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Communicating the results of clinical research to participants: attitudes, practices, and future directions

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Public perspectives on returning genetics and genomics research results

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Parents' attitudes toward pediatric genetic testing for common disease risk

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Is there a duty to share genetic information?

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

The meaning of genetic research results: reflections from individuals with and without a known genetic disorder

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Controversies in communication of genetic screening results for cancer: a report from the American Society of Preventive Oncology's Screening Special Interest Group (ASPO's 33rd Annual Meeting, March 8 to 10, 2009, Tampa, Florida).

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Attitudes of African-American parents about biobank participation and return of results for themselves and their children

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Genetic testing and tumor surveillance for children with cancer predisposition syndromes

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

American Society of Clinical Oncology Policy Statement Update: Genetic Testing for Cancer Susceptibility

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Maternal perspectives on the return of genetic results: context matters

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Ethical issues arising from the participation of children in genetic research

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Informed consent for enrolling minors in genetic susceptibility research: a qualitative study of at-risk children's and parents' views about children's role in decision-making

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Informed consent and genomic incidental findings: IRB chair perspectives

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Researcher Perspectives on Disclosure of Incidental Findings in Genetic Research

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Do researchers have an obligation to actively look for genetic incidental findings?

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

The incidentalome: a threat to genomic medicine

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

Returning individual research results: development of a cancer genetics education and risk communication protocol

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

The emergence of an ethical duty to disclose genetic research results: international perspectives

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

7 January 2021

Paediatric research and the communication of not-so incidental findings

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

7 January 2021

Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

7 January 2021

Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2013.201

7 January 2021