(Q36197077)

English

How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others?

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scholarly article

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others? (English)

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

Ellen Wright Clayton

1

object named as

Ellen Wright Clayton

0 references

author name string

Ellen Wright Clayton

1

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

publication date

1 September 2015

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

Journal of Law, Medicine, and Ethics

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

43

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

3

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

538-544

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

Regulatory changes raise troubling questions for genomic testing

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Parents' preferences for return of results in pediatric genomic research

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Addressing the ethical challenges in genetic testing and sequencing of children

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

The legal authority of mature minors to consent to general medical treatment

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Technical report: Ethical and policy issues in genetic testing and screening of children

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Ethical and policy issues in genetic testing and screening of children

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Attitudes of African-American parents about biobank participation and return of results for themselves and their children

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

The legal risks of returning results of genomics research

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Parents' attitudes toward pediatric genetic testing for common disease risk

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Parental attitudes, beliefs, and perceptions about genetic testing for FAP and colorectal cancer surveillance in minors

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Health-related direct-to-consumer genetic testing: a review of companies' policies with regard to genetic testing in minors

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Brief assessment of parents' attitudes toward testing minor children for hereditary breast/ovarian cancer genes: development and validation of the Pediatric BRCA1/2 Testing Attitudes Scale (P-TAS)

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Genetic testing of children for adult-onset diseases: is testing in the child's best interests?

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

The HIPAA privacy rule and adolescents: legal questions and clinical challenges

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Informed consent for enrolling minors in genetic susceptibility research: a qualitative study of at-risk children's and parents' views about children's role in decision-making

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

1 October 2017

Genetic testing in children.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

2 July 2018

Incidental findings in clinical genomics: a clarification

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

22 September 2018

Decision-making by adolescents and parents of children with cancer regarding health research participation.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

22 September 2018

Adults' values and attitudes about genetic testing for obesity risk in children.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

22 September 2018

Mothers and daughters from breast cancer families: a qualitative study of their perceptions of risks and benefits associated with minor's participation in genetic susceptibility research.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

22 September 2018

State v. Physicians et al.: legal standards guiding the mature minor doctrine and the bioethical judgment of pediatricians in life-sustaining medical treatment

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

21 October 2018

Assent for treatment: clinician knowledge, attitudes, and practice

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

21 October 2018

Testing children for genetic predispositions: is it in their best interest?

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

21 October 2018

ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

21 October 2018

Maternal perspectives on the return of genetic results: context matters

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

21 October 2018

Removing the shadow of the law from the debate about genetic testing of children

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

21 October 2018

Informed consent, parental permission, and assent in pediatric practice. Committee on Bioethics, American Academy of Pediatrics

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617197

5 December 2018

Attitudes toward the genetic testing of children among adults in a Utah-based kindred tested for a BRCA1 mutation

1 reference

https://pubmed.ncbi.nlm.nih.gov/26479563

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Genetic testing: who decides, who informs?

1 reference

https://pubmed.ncbi.nlm.nih.gov/26479563

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Identifiers

10.1111/JLME.12296

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

PMC publication ID

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

PubMed publication ID

1 reference

Europe PubMed Central

PMC publication ID

12 August 2017

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