(Q33737044)

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Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies

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scholarly article

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Europe PubMed Central

PubMed publication ID

29 July 2017

1 reference

19 July 2020

systematic review

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PubMed publication ID

Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies (English)

1 reference

Europe PubMed Central

PubMed publication ID

29 July 2017

whole genome sequencing

1 reference

19 September 2019

exome sequencing

1 reference

19 July 2020

incidental finding

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PubMed publication ID

Hugh Christian Watkins

4

1 reference

Europe PubMed Central

PubMed publication ID

29 July 2017

3

object named as

Michael Parker

0 references

Elizabeth Ormondroyd

object named as

Elizabeth Ormondroyd

5

0 references

object named as

Benjamin Fletcher

2

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author name string

Michael P Mackley

1

1 reference

Europe PubMed Central

PubMed publication ID

29 July 2017

language of work or name

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publication date

1 September 2016

1 reference

Europe PubMed Central

PubMed publication ID

29 July 2017

1 March 2017

2 references

19 September 2019

19 July 2020

Genetics in Medicine

3 references

Europe PubMed Central

PubMed publication ID

29 July 2017

19 September 2019

19 July 2020

19

1 reference

Europe PubMed Central

PubMed publication ID

29 July 2017

3

1 reference

Europe PubMed Central

PubMed publication ID

29 July 2017

283-293

1 reference

Europe PubMed Central

PubMed publication ID

29 July 2017

copyright license

Creative Commons Attribution 4.0 International

2 references

Europe PubMed Central

19 September 2019

Europe PubMed Central

19 July 2020

copyright status

0 references

https://scigraph.springernature.com/pub.10.1038/gim.2016.109

0 references

The impact of communicating genetic risks of disease on risk-reducing health behaviour: systematic review with meta-analysis

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5447864

21 June 2018

Patients' views on incidental findings from clinical exome sequencing

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5447864

21 June 2018

Oncologists' and cancer patients' views on whole-exome sequencing and incidental findings: results from the CanSeq study

1 reference

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21 June 2018

Clinical and Counseling Experiences of Early Adopters of Whole Exome Sequencing.

1 reference

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21 June 2018

Are physicians prepared for whole genome sequencing? a qualitative analysis

1 reference

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21 June 2018

Compare and contrast: a cross-national study across UK, USA and Greek experts regarding return of incidental findings from clinical sequencing

1 reference

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The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists

1 reference

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21 June 2018

Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research

1 reference

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21 June 2018

"Not Tied Up Neatly with a Bow": Professionals' Challenging Cases in Informed Consent for Genomic Sequencing

1 reference

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21 June 2018

Preferences for return of incidental findings from genome sequencing among women diagnosed with breast cancer at a young age.

1 reference

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21 June 2018

Overcoming challenges to meaningful informed consent for whole genome sequencing in pediatric cancer research.

1 reference

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21 June 2018

The SickKids Genome Clinic: developing and evaluating a pediatric model for individualized genomic medicine.

1 reference

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21 June 2018

Research participants in NGS studies want to know about incidental findings

1 reference

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21 June 2018

Association of Researcher Characteristics with Views on Return of Incidental Findings from Genomic Research

1 reference

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21 June 2018

Defining and managing incidental findings in genetic and genomic practice

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5447864

21 June 2018

Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).

1 reference

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21 June 2018

Incidental findings from clinical sequencing in Greece: reporting experts' attitudes

1 reference

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21 June 2018

Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey study

1 reference

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21 June 2018

Attitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5447864

21 June 2018

Return of genomic results to research participants: the floor, the ceiling, and the choices in between

1 reference

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21 June 2018

Clinical exome sequencing in daily practice: 1,000 patients and beyond

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5447864

21 June 2018

Lynch syndrome patients' views of and preferences for return of results following whole exome sequencing

1 reference

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21 June 2018

Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases

1 reference

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21 June 2018

Informed consent for return of incidental findings in genomic research

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5447864

21 June 2018

Informed consent for exome sequencing in diagnostics: exploring first experiences and views of professionals and patients

1 reference

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21 June 2018

Patient decisions for disclosure of secondary findings among the first 200 individuals undergoing clinical diagnostic exome sequencing.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5447864

21 June 2018

Processes and factors involved in decisions regarding return of incidental genomic findings in research

1 reference

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21 June 2018

Using the framework method for the analysis of qualitative data in multi-disciplinary health research

1 reference

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21 June 2018

Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children

1 reference

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Recommendations for returning genomic incidental findings? We need to talk!

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21 June 2018

Testing personalized medicine: patient and physician expectations of next-generation genomic sequencing in late-stage cancer care

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21 June 2018

Stakeholders' opinions on the implementation of pediatric whole exome sequencing: implications for informed consent

1 reference

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21 June 2018

Whole-genome sequencing in health care. Recommendations of the European Society of Human Genetics

1 reference

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21 June 2018

Researchers' views on return of incidental genomic research results: qualitative and quantitative findings

1 reference

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21 June 2018

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

1 reference

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21 June 2018

Views of genetics health professionals on the return of genomic results.

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21 June 2018

Incidental findings from clinical genome-wide sequencing: a review

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Point-counterpoint. Patient autonomy and incidental findings in clinical genomics

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Point-counterpoint. Ethics and genomic incidental findings

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'Information is information': a public perspective on incidental findings in clinical and research genome-based testing

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A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs

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Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting

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Perspectives of clinical genetics professionals toward genome sequencing and incidental findings: a survey study

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Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting

1 reference

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Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study

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Exploring concordance and discordance for return of incidental findings from clinical sequencing

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Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups

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Uptake rates for breast cancer genetic testing: a systematic review

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Storylines of research in diffusion of innovation: a meta-narrative approach to systematic review

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Lay understanding of familial risk of common chronic diseases: a systematic review and synthesis of qualitative research

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Secondary variants--in defense of a more fitting term in the incidental findings debate.

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2016.109

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Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2016.109

21 January 2018

Informed consent for exome sequencing research in families with genetic disease: the emerging issue of incidental findings.

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2016.109

21 January 2018

Views of primary care providers regarding the return of genome sequencing incidental findings

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2016.109

21 January 2018

Attitudes of non-African American focus group participants toward return of results from exome and whole genome sequencing.

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2016.109

21 January 2018

Attitudes of African Americans toward return of results from exome and whole genome sequencing.

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2016.109

21 January 2018

Focus group discussions on secondary variants and next-generation sequencing technologies.

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2016.109

21 January 2018

Reporting genomic secondary findings: ACMG members weigh in.

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2016.109

21 January 2018

Experiences with obtaining informed consent for genomic sequencing.

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2016.109

21 January 2018

Pediatric Professionals' Attitudes about Secondary Findings in Genomic Sequencing of Children

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2016.109

21 January 2018

Reporting Incidental Findings in Clinical Whole Exome Sequencing: Incorporation of the 2013 ACMG Recommendations into Current Practices of Genetic Counseling

1 reference

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30 October 2018

Attitudes of parents toward the return of targeted and incidental genomic research findings in children

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5447864

30 October 2018

Genetics professionals' perspectives on reporting incidental findings from clinical genome-wide sequencing

2 references

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5447864

30 October 2018

https://api.crossref.org/works/10.1038%2FGIM.2016.109

21 January 2018

Incidental findings in genetic research and clinical diagnostic tests: a systematic review

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5447864

30 October 2018

“I want to know what's in Pandora's box”: Comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing

2 references

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5447864

30 October 2018

https://api.crossref.org/works/10.1038%2FGIM.2016.109

21 January 2018

Identifiers

10.1038/GIM.2016.109

1 reference

Europe PubMed Central

PubMed publication ID

29 July 2017

PMC publication ID

1 reference

Europe PubMed Central

PubMed publication ID

29 July 2017

PubMed publication ID

1 reference

Europe PubMed Central

PubMed publication ID

29 July 2017

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